We are very excited to announce that we raised nearly $6,000 this year at the annual Greater Atlanta BrewFest! We gathered on March 24th in Kennesaw, GA, with great beer, amazing BBQ, live music, and [...]
In February, the friends in Woodbridge, NJ raised over $300 for Fragile X at a bowling fundraiser and family event. It was organized by a high school sophomore, Vanshi Shah, in honor of [...]
[mpc_textblock content_width="100" font_size="16" font_line_height="1.7" margin_divider="true" mpc_tooltip__border_divider="true" mpc_tooltip__padding_divider="true"] At first, that might sound like a strange question. But, love is someone or something that touches you in your deepest place and warms your heart. Fragile [...]
It’s always fun to look back and see the impressive list of events that so many enthusiastic, creative and energetic fundraisers put on each year. And 2013 was amazing! You can just feel the FUN that was had by all!
Have you ever wished you could organize a fundraiser, but thought the the work would be more than you could handle? So did Marie Horowitz and Janet Armetta until they found a partner in Applebee’s Restaurants. Applebee’s Flapjack Fundraiser program.....
“The walk just keeps getting bigger and better every year!” This was a comment made by the mom in one of our families who drives more than three hours to attend the Walk for Faces of Fragile X in Kansas. She was particularly excited this year because her brother and his family joined them at the walk. That’s what it’s all about: families and their communities coming together to raise awareness, foster acceptance and see that we are not alone on this sometimes daunting journey.
UPDATE: Just as we were about to publish this article, we were pleased to learn that NFXF Board Member Dave Justus and his wife Joy will match another $10K in Let 'Em Know 5K donations [...]
Focus on Fundraisers If you haven’t heard by now, we are hosting our first annual “Let ‘Em Know Virtual 5k Run/Walk for Fragile X” in honor of National Fragile X Awareness month in July! Thanks [...]
The Christoff and Frey families have been involved with the Fragile X community since Mitchell Christoff was diagnosed with Fragile X syndrome at age 3 back in 2002. Mitchell turns 14 in April, he enjoys [...]