Send a Valentine E-card to Someone Xtraordinary
Give in Honor of a Loved One this Valentine's Day! Your Valentine’s Day e-card, with artwork designed by Charlye, will spread love to someone Xtraordinary!
5th Annual FORE! Fragile X Golf Event
The annual FORE! Fragile X golf event fundraiser, hosted by the Souder family, has been an incredibly inspiring demonstration of support. Thank you Jay, Anne and Alec - and your many supporters over the years!
The Marner Family Hosts 3rd Annual Golf Outing in Support of NFXF
The 3rd Annual Quad Cities Fragile X Golf Outing on June 25, 2022, at the Byron Hills Golf Course in Byron Hills, Illinois, was a huge success — in spite of the threat of a downpour!
How to Create a Facebook Fundraiser
In this video, learn how to set up your fundraising page and link it to a parallel Facebook fundraising page. This connection has been a game-changer in helping to maximize fundraising efforts.
The Marner Family Hosts a Golf Outing in Support of NFXF
The Marners held a golf outing in western Illinois to raise support for the NFXF. “We love being able to help in any way we can and this is something Reid also had so much fun with!”
NFXF, Heartland Chapter — Iowa and South Dakota, Receives Valero Grant
Valero loved Heartland Chapter Vice President Brenda Slama’s sensory room proposal and awarded the chapter with a $6,200 grant during the 2019 Valero Texas Open Benefit for Children.
A Workplace Fundraiser You’ll Want to Copy
Matt Faruolo wanted to do something to raise awareness about Fragile X, so he decided to host a weeklong fundraising event at work. Here’s how he did it.
Support the NFXF Through the Combined Federal Campaign
You can support the National Fragile X Foundation through the Combined Federal Campaign (CFC), the federal government's charitable giving program that automatically deducts your contributions to your charity of choice each pay period. According to [...]
Volunteer Highlight: Rachel DeLine
Written by Kimberly Powell Beer is hard work! Just ask Rachel DeLine, Greater Atlanta Chapter Leader. The Greater Atlanta area has been steadily growing in the craft beer industry with more and more breweries [...]
What do you love about Fragile X?
[mpc_textblock content_width="100" font_size="16" font_line_height="1.7" margin_divider="true" mpc_tooltip__border_divider="true" mpc_tooltip__padding_divider="true"] At first, that might sound like a strange question. But, love is someone or something that touches you in your deepest place and warms your heart. Fragile [...]
Fishing for a Cure
Joey Christoff’s son, Mitchell, has Fragile X syndrome, and his wife and mother-in-law are carriers at risk of Fragile X-associated disorders. Caring for them and giving hope to other families is what drives Joey [...]
Mathias Fragile X Fundraiser, Rogers Neighborhood Family Fund and more!
Summer may be a time of R&R in the rest of the world, but our devoted Fragile X fundraisers always seem to use the warm months to heat up their engines and put their creative [...]
Focus on Fundraisers: December
2011 Annual Fund Since 1984, the NFXF has made it a goal to always be looking forward. Whether we are providing support and information for a newly diagnosed family, advocating each year for federal funding [...]
September Fragile X Fundraisers Review
Walk for Fragile X September 3, 2011 Milwaukee, WI Fragile X LINKS Group of Wisconsin On September 3, the Fragile X LINKS Group of Wisconsin gathered with friends and family for their first [...]
2nd Annual Hat Party
National Fragile X Foundation Board Member Deborah Kwan is hosting the 2nd Annual Hat Party to benefit the NFXF. Come wearing your favorite hat for a night of drinks, appetizers, and dancing! The Northern California [...]