Valero loved Heartland Chapter Vice President Brenda Slama’s sensory room proposal and awarded the chapter with a $6,200 grant during the 2019 Valero Texas Open Benefit for Children.
Matt Faruolo wanted to do something to raise awareness about Fragile X, so he decided to host a weeklong fundraising event at work. Here’s how he did it.
You can support the National Fragile X Foundation through the Combined Federal Campaign (CFC), the federal government's charitable giving program that automatically deducts your contributions to your charity of choice each pay period. According to »
Written by Kimberly Powell Beer is hard work! Just ask Rachel DeLine, Greater Atlanta Chapter Leader. The Greater Atlanta area has been steadily growing in the craft beer industry with more and more breweries opening »
At first, that might sound like a strange question. But, love is someone or something that touches you in your deepest place and warms your heart. Fragile X, along with its many challenges, »
We are frequently amazed and humbled by the enthusiasm that so many members of the Fragile X community demonstrate when they take a big idea and turn it into a successful reality. Two of these remarkable people are Missy and Mark Zolecki of Plainfield, Illinois. Missy and Mark, along with Gail Harris-Schmidt, lead the Fragile X LINKS Group of Greater Chicago. The group’s goals include...
Summer may be a time of R&R in the rest of the world, but our devoted Fragile X fundraisers always seem to use the warm months to heat up their engines and put their creative »
2011 Annual Fund Since 1984, the NFXF has made it a goal to always be looking forward. Whether we are providing support and information for a newly diagnosed family, advocating each year for federal funding »
Walk for Fragile X September 3, 2011 Milwaukee, WI Fragile X LINKS Group of Wisconsin On September 3, the Fragile X LINKS Group of Wisconsin gathered with friends and family for their first »
National Fragile X Foundation Board Member Deborah Kwan is hosting the 2nd Annual Hat Party to benefit the NFXF. Come wearing your favorite hat for a night of drinks, appetizers, and dancing! The Northern California »
Fragile X Charity Golf ClassicOn August 12, Missy Zolecki and the SW Chicago LINKS group held its first Fragile X Charity Golf Classic in Romeoville, IL. In addition to the tournament, the event offered some »
