The purpose of this study is to improve our understanding of how differences in brain activity affect learning, language, and behavior in children with Fragile X Syndrome.
*Actual Linda Sorensen not shown I have always been in awe of the strength and courage of each of you. I know life with Fragile X isn’t easy, and making a commitment to [...]
Central Alabama held its first annual “All in for Fragile X” casino night to benefit the National Fragile X Foundation and its Central Alabama Chapter. It was held at Heatherwood Hills Country Club and featured [...]
Five moms met in East Windsor, CT on March 14th where they shared a meal, talked about housing, getting ready for adult services and had all around a lot of fun! One of the most [...]
St. John’s is seeking mothers to volunteer to participate in a study on the effectiveness of a parent training program for parents of children with Fragile X syndrome.
MGH/Harvard Study: Assessment of Glutamatergic Neurosystem in Fragile X Syndrome for Targeted Therapy
The aim of the study is to examine problems with a chemical messenger called glutamate in the brain in Fragile X syndrome, and how it impacts sensory, motor and cognitive abilities and implicated structural and functional connectivity.
We are very excited to announce that we raised nearly $6,000 this year at the annual Greater Atlanta BrewFest! We gathered on March 24th in Kennesaw, GA, with great beer, amazing BBQ, live music, and [...]
This discussion provides clinical perspectives on the behavioral differences between FXS and what are thought to be core features of autism. There is still much to be learned about identifying behaviors that suggest the presence or absence of ASD in FXS.
Written by Kimberly Powell Beer is hard work! Just ask Rachel DeLine, Greater Atlanta Chapter Leader. The Greater Atlanta area has been steadily growing in the craft beer industry with more and more breweries opening [...]
In February, the friends in Woodbridge, NJ raised over $300 for Fragile X at a bowling fundraiser and family event. It was organized by a high school sophomore, Vanshi Shah, in honor of [...]
The Modifiers of Fragile X-Associated Disorders (FX-MOD) study is trying to answer the question, why do some people develop tremor and balance issues and others do not?