- Medical history and behavioral testing (approx. 1.5 hours)
- PET-MRI (approx. 2 hours)
- Magnetoencephalography (approx. 1 hour).
The study started on March 15, 2018, and ends by June 30, 2020. The IRB approval number is 2017P001039.
Travel/time subsidy: compensation up to $350 for participation.
If you are interested, please contact:
Maria Mody, PhD
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This survey will help support families in the Early Check study in NC whose newborns have been diagnosed with Fragile X and inform the design of an early intervention program for these babies.
RTI Int’l and UNC at Chapel Hill are conducting a research study to learn more about early development of young children with Fragile X in North Carolina, and the experiences of their parents when obtaining the diagnosis and early intervention services.
A survey to measure levels of behavior. When someone with FXS is experiencing anxiety, describe what you see and hear, and how the experience impacts your/their quality of life.