- Medical history and behavioral testing (approx. 1.5 hours)
- PET-MRI (approx. 2 hours)
- Magnetoencephalography (approx. 1 hour).
The study started on March 15, 2018, and ends by June 30, 2020. The IRB approval number is 2017P001039.
Travel/time subsidy: compensation up to $350 for participation.
If you are interested, please contact:
Maria Mody, PhD
maria@nmr.mgh.harvard.edu
(617) 726-6913
View More Opportunities
Study: Family Relationships and Parenting of Children with FXS
The UC Davis MIND Institute is currently recruiting study research participants. The study’s goal is to better understand the ways in which characteristics of mothers and fathers and relationships within the family influence the language learning environment of young boys with Fragile X syndrome.
Survey: Needs and Experiences of Families with Young Children with Fragile X
This survey will help support families in the Early Check study in NC whose newborns have been diagnosed with Fragile X and inform the design of an early intervention program for these babies.
Early Development of Young Children with Fragile X in North Carolina
RTI Int’l and UNC at Chapel Hill are conducting a research study to learn more about early development of young children with Fragile X in North Carolina, and the experiences of their parents when obtaining the diagnosis and early intervention services.
Metformin in Individuals with Fragile X Syndrome
We have preliminary evidence that metformin, a common type 2 diabetes medication, is beneficial for language, cognition, and behavior in both children and adults with Fragile X Syndrome.
Describing Anxiety for People with Fragile X Syndrome
A survey to measure levels of behavior. When someone with FXS is experiencing anxiety, describe what you see and hear, and how the experience impacts your/their quality of life.
Visual Perception Study
Our research is looking at how you see and remember the visual world, and how attention changes what we see. We hope our findings will provide a better understanding of the differences in vision and attention occurring in autism.
