Educational strategies are not just helpful for school-aged children! The one-hour Q&A panel discussion, moderated by Hilary Rosselot, includes panelists with expertise and suggestions to support individuals living with Fragile X throughout the lifespan!
Read and share the first edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!
Adult housing options and support services may be limited and difficult to access. A group of parents shared their firsthand experiences supporting their loved one with Fragile X determine a suitable living situation.
The 8th Annual Bike to X Out Fragile X took place on a beautiful Saturday, June 3, 2023.
Register now to join other rare disease advocates for meetings between August 7th - 18th. Sign up today for Rare Across America!
NFXF Western Massachusetts and Connecticut chapters host a night out
NFXF Western Massachussets Chapter hosts their7th Annual Hadley Cornhole Championship fundraiser
Announcing FY 2023 federal research funding opportunities across six award categories available for all Fragile X- associated conditions and disorders.
A panel of experts present research-based information on the factors that promote or hinder the transition to independence of young adults with FXS after completion of high school and formal education. Panelists Leonard Abbeduto, Jessica Klusek, Angie Thurman, and Julie Lounds Taylor also take questions from the audience.
The always popular Bike To X Out Fragile X fundraising event draws almost 70 riders for a unique bike ride through Des Moines and Waukee, Iowa. Learn more about their day.
Learn about the Centers for Collaborative Research in Fragile X and FMR1-Related Conditions Program, which supports research to improve the diagnosis and treatment of Fragile X syndrome and its related conditions.
Representatives from the CDC join Dr. Elizabeth Berry Kravis discusses the advances made in understanding Fragile X Syndrome through FORWARD.
Lizzie's 10th Annual Open House Date: September 20, 2014 Time: 10:00 AM - 03:00 PM Location: Geneva History Center113 S. 3rd Street Geneva, IL 60134 Hosts: Nancy Reilly Details Participating Vendors Discovery Toys [...]
