In the latest from the NFXF Webinar Series, Drs. Georgina Peacock and Jennifer Kaminski from the Centers for Disease Control and Prevention join Dr. Elizabeth Berry-Kravis and NFXF team members Amie Milunovich and Robby Miller, to discuss the advances made in understanding Fragile X Syndrome through FORWARD↗, the Fragile X Online Registry With Accessible Research Database.
Drs. Peacock and Kaminski each express their gratitude for the partnership with the National Fragile X Foundation and to the families who have participated.
The good news is, there are currently 18 journal publications resulting from FORWARD data, with many more to come!
Dr. Berry-Kravis, FORWARD principal investigator, gives a brief description of key findings and recommendations from some of these publications, including their role in informing new treatments and therapies for individuals with Fragile X syndrome. She also discusses the virtual participation option for adults↗ with Fragile X syndrome.
Robby Miller discusses how FORWARD data benefits the development of resources to help families, including NFXF Treatment Recommendations↗.
How to Watch
Enter your name and email address below for your access to the on-demand recording of the webinar:
Recent Posts You May Be Interested In
South Carolina and Wisconsin Proclaim Fragile X Awareness Day
The governors of Wisconsin and South Carolina proclaim July 22, 2021 as Fragile X Awareness Day in South Carolina. Read their proclamations.
NFXF Webinar Series: NIH Fragile X Centers of Excellence
Learn about the Centers for Collaborative Research in Fragile X and FMR1-Related Conditions Program, which supports research to improve the diagnosis and treatment of Fragile X syndrome and its related conditions.
NFXF Webinar Series: How FORWARD is Advancing Our Understanding of Fragile X Syndrome
Representatives from the CDC join Dr. Elizabeth Berry Kravis discusses the advances made in understanding Fragile X Syndrome through FORWARD.