Support and Resources Archives — National Fragile X Foundation

Building Social Supports: A Guide for Parents

Individuals with FXS often have difficulty establishing meaningful friendships. Limited social skills, social anxiety and an often narrow range of interests contribute to these difficulties. Various interventions can increase the social network of those with [...]

By NFXF| 2018-06-13T09:48:17+00:00 Jun 13, 2018|Behavior, Support and Resources, Treatment and Intervention|Comments Off

Target and Tommy Hilfiger introduce adaptive clothing for people with special needs

Both Target and Tommy Hilfiger are announcing new adaptive clothing to accommodate the needs of people with disabilities. Target releases their adaptive clothing for children under their Cat & Jack brand. These clothes include removable [...]

By NFXF| 2017-10-24T10:50:24+00:00 Oct 19, 2017|Support and Resources|Comments Off

Visual Wizardry: Using Visual Supports to Change your Child’s Life

Visual supports help translate the environment and expectations to an individual with FXS without requiring direct processing of language. This type of information can be processed quickly. Visual supports remain present, so they can be referred to more than one time, whereas verbal directions might be heard and then forgotten. Learning to use visual supports can help alleviate anxiety for the person with FXS and frustration for the person providing support.

By NFXF| 2016-08-31T11:00:42+00:00 Aug 31, 2016|FXS, Support and Resources|Comments Off

Married…With (Fragile X) Children

One of the most prevailing fears for a couple when their child has a disability is that their marriage will be affected; perhaps it will likely end. In fact, one of the things couples are [...]

By NFXF| 2015-11-16T13:33:38+00:00 Nov 16, 2015|FXS, FXTAS, Support and Resources|Comments Off

Fragile X Syndrome and Autism Spectrum Disorder: Similarities and Differences

This summary was extracted in part from the Autism Spectrum Disorder in Fragile X Syndrome consensus document and from original text by Dr. Dejan Budimirovic of the Kennedy-Krieger Institute FX Clinic in Baltimore. About consensus documents: [...]

By NFXF| 2019-04-18T18:35:26+00:00 Dec 18, 2014|Support and Resources|Comments Off

Strategies for Day-to-Day Life

Source: Developmental FX Sarah “Mouse” Scharfenaker, MA, CCC-SLP Tracy Murnan Stackhouse, MA, OTR As therapists working within the Fragile X community, we have been entrusted by parents to provide state-of-the-art services to their children. We [...]

By NFXF| 2012-06-29T14:14:54+00:00 Jun 29, 2012|Fragile Xtras, Support and Resources, therapy, Treatment|Comments Off

Spotlight on LINKS Group: Families for Fragile X

When their son Matthew was diagnosed with Fragile X at the age of 14 months Michele & Paul Kaplan's world crumbled.Â Thankfully, they were able to attend the International Fragile X Conference in Atlanta two [...]

By NFXF| 2011-07-29T10:59:00+00:00 Jul 29, 2011|Guest Submission, Support and Resources, Uncategorized|Comments Off