The Spatial Development Lab at Montclair State University is conducting a research study to learn about spatial abilities, such as why we sometimes get lost in the environment.
About the Study
Who can participate?
Individuals with intellectual and/or developmental disabilities, ages 12-25, may be eligible to participate.
What will happen in the study?
If the individual qualifies and decides to be in this research study, they will complete fun computer and paper games online, for 2-4 sessions over the next few weeks. Currently the study is virtual; there is an option to complete the study in person.
The following is a list of some of the games that will happen during the study:
- Parent measures: parents will complete 2 surveys about their children’s daily life skills and spatial skills.
- Participant testing: participants with FXS will complete a series of intelligence tests and assessments of spatial abilities. These assessments are framed as games.
What are the good things that can happen from this research?
There are no direct benefits to participants or their parents being in this study, but others may benefit from this study. The knowledge we learn will help advance a basic scientific understanding of spatial abilities in people with intellectual and developmental disabilities, including people with FXS. The knowledge we learn will also help inform training programs to help people with intellectual and developmental disabilities, including people with FXS, better interact with, remember, and navigate their environment.
What are the bad things that can happen from this research?
The risks are no greater than those in ordinary life. If the participant gets tired, we will just take a break. Additionally, if the parent feels uncomfortable answering any questions about their child’s daily behaviors, they can skip the questions they do not want to answer.
Will you/your child be paid to complete this study?
Parents (or the participants) will also receive a $50 Amazon gift card for completing this research study.
Our Most Recent Opportunities
Study: Autonomic and Sensory Functioning in Infants with FMR1 Conditions
Dr. Jane Roberts and the research staff at the Neurodevelopmental Disorders Laboratory at USC are conducting a research study to learn about the development of infants with Fragile X syndrome and Fragile X premutation over the first few years of life.
Survey: Research Experiences in Fragile X Families
The Brain and Biomarker Lab at the University of Oklahoma is conducting a survey to learn about experiences with research, particularly biomedical research, in families with Fragile X syndrome (FXS).
Study: Language Study for Children and Adolescents with Fragile X syndrome
Researchers at the University of Wisconsin-Madison and the University of Massachusetts-Amherst are conducting a study to learn about links between learning and language in Fragile X syndrome.
Survey: Fragile X Nutrition Survey
The University of Wisconsin-Madison is conducting a survey to learn about associations between infant feeding and neurodevelopment in children with Fragile X syndrome.
Clinical Trial: Phase 2B/3 Studies of BPN14770 in Fragile X syndrome
Tetra Therapeutics is conducting a two randomized, placebo-controlled studies of BPN14770/zatolmilast to learn about the experimental drug’s safety and efficacy for males ages 12-45.
Study: Aging in Toolbox
Researchers around the country are conducting a study to better understand cognitive profiles in adults with intellectual disability. This study is an extension of the ongoing Toolbox Study, which is aimed to optimize cognitive assessment tools for children and young adults with intellectual disabilities.