About Robby Miller

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So far Robby Miller has created 12 blog entries.

The 1990’s and the NFXF Becoming a True National Organization

By |2024-04-08T16:11:08-04:00Mar 19, 2024|Foundation|

Thankfully, we’ve come a long way since the day when FXS was jokingly referred to as “Fragile WHATSyndrome?!” In the 1990’s, many changes were taking place as a result of the increased scientific study of Fragile X and how the growing body of knowledge was impacting the work of the Foundation. 

The National Fragile X Foundation — The Early Years: 1984–1990s

By |2024-04-08T12:49:20-04:00Feb 20, 2024|Foundation|

The focus in the early years of the NFXF was to “get the word out!” During that time period, the inherited nature of Fragile X was not fully understood. However, early pioneers in the Fragile X world, such as Dr. Stephanie Sherman and Dr. Ted Brown, were steadily making progress in sorting out the genetics.

The National Fragile X Foundation — 1984: The Beginning

By |2024-01-24T12:55:57-05:00Jan 24, 2024|Foundation|

At the beginning of the 1980s, a young developmental pediatrician, Dr. Randi Hagerman, was building a career at Children’s Hospital Colorado. Her curiosity led her to some of the early papers on X-linked intellectual disabilities (in particular, those of Dr. Gillian Turner from Australia) and descriptions of what was still often referred to as Martin-Bell Syndrome.