Let the Awareness Continue!

By |2021-09-30T11:23:43-04:00Aug 13, 2021|Blog|

It looks like in many places we're back to wearing masks, or will be soon. Our family has pulled out all our favorite masks and getting used to them all over again.

LIVE: X Strides Closing Ceremony

By |2021-07-31T16:39:31-04:00Jul 29, 2021|Blog|

Join us for the live, virtual closing ceremony of the 2021 X Strides. We will have prizes, awards, and more. It is a can't miss event! Thank you to everyone who helped raise awareness for Fragile X.

Webinar: Using Mindfulness and Acceptance Techniques to Reduce Stress

By |2021-11-04T21:29:14-04:00Jun 24, 2021|Blog, Carriers, Webinar|

Dr. Anne Wheeler will provide an overview of the literature on stress vulnerability in women with a premutation, describe how mindfulness-based techniques can be helpful for stress-reduction, allow for some experiential practice of these techniques, and provide practical resources for increasing mindfulness, reducing stress, and improving overall well-being.

In Memory of Steve Warren

By |2021-06-09T13:02:40-04:00Jun 9, 2021|Blog|

As a geneticist and academic, Warren’s contributions to the understanding of Fragile X and to the broader Fragile X community are immense. In addition to being a gifted scientist, he was an outstanding leader, mentor, and friend who will be greatly missed.

Webinar: Females and Fragile X Syndrome

By |2021-08-19T17:03:04-04:00Jun 9, 2021|Blog, FXS, Webinar|

Dr. Marcia Braden joins us to discuss Females and Fragile X syndrome (FXS). This webinar helps you better understand the features associated with the syndrome. Information processing, cognitive strengths and weakness as well as social issues are identified. Strategies to address common challenges are also discussed.

Welcome to Our Newest Board Members

By |2021-06-04T10:03:56-04:00Jun 4, 2021|Blog|

On behalf of the NFXF Board of Directors, I am excited to welcome our newest class of directors for 2021. This group of individuals have all been active members of our Fragile X community for many years and contribute in all areas of outreach.

Fragile X Awareness Signs

By |2021-05-28T15:05:16-04:00May 28, 2021|Awareness Month, Blog|

We designed several Fragile X awareness yard signs so you can choose one that serves you best. Each are printed on-demand and shipped directly to you with everything you need to display them in your yard for all of July or even longer if you choose.

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