How to Stride – Virtual

The Sibling & Self-advocate Network (SSAN) hosts monthly virtual sessions via Zoom. They hosted 2 sessions during Fragile X Awareness Month with the theme of “How to Stride”.  During the first event sibling Ashlyn Southard, a Nature Occupational Therapist, led the group in how to use their senses to get the most out of their experience during a walk/hike! Everyone had the chance to share and discuss after Ashlyn’s talk.  Thank you, Ashlyn! During the second event Heather Crosby, a Pilates instructor and mom of individuals living with Fragile X, invited attendees into her studio (virtually), to show them how Pilates can be for everybody!

Diane Southard shared, “It was great hearing how people decided to Stride in July! What a great time catching up with our Siblings and Self Advocates!”

Interested in joining future events? Information is posted on the SSAN Facebook page or email for details.

Thank you to Diane Southard, Kelley Dunphy, and Dillon Kelley for organizing and hosting these virtual events to provide opportunities for siblings and self-advocates in the Fragile X community to connect!

CT-Western MA Night Out Mar 23

Moms and Siblings & Self-Advocates Night Out – Farmington, CT

The NFXF Western Massachusetts and Connecticut Chapters along with the Sibling & Self-advocate Network (SSAN) organized an evening out on September 28, 2023.  It was an evening filled with casual conversations on many topics, sharing successes and discussing challenges and strategies. The group welcomed back many familiar faces as well as a parent who was attending for the first time.

Thank you to the Chapters and the NFXF Sibling & Self-Advocate Network for providing opportunities for families impacted by Fragile X to connect with others in the community!

CT-Western MA Night Out Mar 23
Missy Zolecki, Director, Community Empowerment

Missy Zolecki
Missy joined NFXF team in 2018 after being an active volunteer since 2010. Missy organized several fundraisers and educational workshops while serving in her volunteer role. Missy is the mother of three children. Her eldest son, Matt, lives with Fragile X syndrome. Prior to joining the NFXF team, Missy had worked as a nurse for more than 20 years. She enjoys traveling and spending time with family and friends.

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