By Anna De Sonia

RFA-HD-25-002: Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions

The National Institute of Health (NIH) recently released a Request for Applications (RFA) for research in Fragile X syndrome (FXS) and FMR1-associated conditions.  An RFA is a type of notice in which an organization announces that grant funding is available.  A grant is a financial award given by the federal, state, or local government for the benefit of research.

In June 2024, NIH published RFA-HD-25-002: Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions.  If you or someone you know are researching FXS and/or FMR1-associated conditions, this could be a great funding opportunity for you! 

If you are interested in applying for this grant, here are some helpful links to learn more:

 Important dates:

  • RFA posted date:  June 7, 2024
  • Letter of Intent due date:  July 6, 2024 
  • Earliest submission date:  July 6, 2024
  • Final submission date:  August 20, 2024

If you have any questions, you should contact the following staff from the participating NIH institutes to discuss how your proposal will align with the goals and requirements of this RFA:

National Institute of Child Health and Human Development (NICHD)
Melissa Parisi, MD, PhD 301-435-6880
Alice Kau, PhD 301-496-1385
National Institute of Mental Health (NIMH)
Lisa Gilotty, PhD 301-443-3825
David Panchision, PhD 301-402-3969
National Institute of Neurological Disorders and Stroke (NINDS)
Robert D. Riddle 301-402-3315
National Institute on Deafness and other Communication Disorders (NIDCD)
Holly Lynn Storkel 301-451-6842
Anna De Sonia, Director, Research Facilitation.

Anna De Sonia
Anna joined the NFXF team in 2024 as Director of Research Facilitation.  She has many years of research experience, starting as a clinical research coordinator at Rush University Medical Center in Chicago in 2010.  There she worked on a variety of clinical trials in the pediatric neurology division, specializing in Fragile X research. Anna earned her bachelor’s in psychology and is a certified clinical research coordinator (CCRC®) through the ACRP (Association of Clinical Research Professionals). She loves spending time with her dog, traveling and exploring new cultures, listening to music, and enjoying time with friends and family.