By Anna De Sonia
RFA-HD-25-002: Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions
The National Institute of Health (NIH) recently released a Request for Applications (RFA) for research in Fragile X syndrome (FXS) and FMR1-associated conditions. An RFA is a type of notice in which an organization announces that grant funding is available. A grant is a financial award given by the federal, state, or local government for the benefit of research.
In June 2024, NIH published RFA-HD-25-002: Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions. If you or someone you know are researching FXS and/or FMR1-associated conditions, this could be a great funding opportunity for you!
If you are interested in applying for this grant, here are some helpful links to learn more:
- Informational Pre-Submission Webinar – RFA-HD-25-002: Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions
- Frequently Asked Questions (FAQs) – Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions
- Read through the entire RFA and apply here
- Learn about the Centers for Collaborative Research in Fragile X and FMR1-Associated Conditions (“Fragile X Centers”) Program here
Important dates:
- RFA posted date: June 7, 2024
- Letter of Intent due date: July 6, 2024
- Earliest submission date: July 6, 2024
- Final submission date: August 20, 2024
If you have any questions, you should contact the following staff from the participating NIH institutes to discuss how your proposal will align with the goals and requirements of this RFA:
| National Institute of Child Health and Human Development (NICHD) | ||
| Melissa Parisi, MD, PhD | parisima@mail.nih.gov | 301-435-6880 |
| Alice Kau, PhD | kaua@mail.nih.gov | 301-496-1385 |
| National Institute of Mental Health (NIMH) | ||
| Lisa Gilotty, PhD | gilottyl@mail.nih.gov | 301-443-3825 |
| David Panchision, PhD | panchisiond@mail.nih.gov | 301-402-3969 |
| National Institute of Neurological Disorders and Stroke (NINDS) | ||
| Robert D. Riddle | riddler@nih.gov | 301-402-3315 |
| National Institute on Deafness and other Communication Disorders (NIDCD) | ||
| Holly Lynn Storkel | holly.storkel@nih.gov | 301-451-6842 |
about
Anna De Sonia
Anna joined the NFXF team in 2024 as Director of Research Facilitation. She has many years of research experience, starting as a clinical research coordinator at Rush University Medical Center in Chicago in 2010. There she worked on a variety of clinical trials in the pediatric neurology division, specializing in Fragile X research. Anna earned her bachelor’s in psychology and is a certified clinical research coordinator (CCRC®) through the ACRP (Association of Clinical Research Professionals). She loves spending time with her dog, traveling and exploring new cultures, listening to music, and enjoying time with friends and family.