2012

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Advocacy Day 2012 Wrap Up

By |2012-03-13T09:24:32-04:00Mar 13, 2012|2012|

Thanks to everyone who participated in Fragile X Advocacy Day 2012. It is now one for the books, as they say, but our work is by no means finished. More than 150 advocates registered and ...

A Mom's Introduction to Advocacy Day

By |2012-02-07T12:29:49-05:00Feb 7, 2012|2012, Guest Submission|

The following is a personal blog post written by Melissa Welin, Co-Founder of the Fragile X LINKS Group of Eastern Massachusetts giving an introduction to Advocacy Day through the eyes of a first time advocate. ...

Introducing the Keeping All Students Safe Act

By |2011-12-20T12:16:45-05:00Dec 20, 2011|2012|

Senator Tom Harkin (D-IA), Chairman of the Senate Health, Education, Labor and Pensions Committee, introduced the Keeping All Students Safe Act, a bill to protect students from ineffective and dangerous seclusion and restraint practices in ...

An Opportunity To Make a Difference

By |2011-12-09T11:09:15-05:00Dec 9, 2011|2012, Action Alert|

To my friends in the Fragile X community: As you will read in the current issue of the Foundation Quarterly the state of affairs in our nation’s capitol is……unsettled. Drastic cuts loom and unless we ...

Washington Update – ABLE Act & Budgets

By |2011-11-18T10:34:48-05:00Nov 18, 2011|2012|

Despite the fact that we're now 7 weeks into fiscal year 2012 the budget for 2012 that impacts FX research and programming (CDC, NIH, DOD) remains unfinished. There was a slim chance that it would ...

The ABLE ACT of 2011 (112th Congress)

By |2011-11-10T09:40:02-05:00Nov 10, 2011|2012|

Those who have participated in previous NFXF Advocacy Days and responded to prior Action Alerts know that we advocated for passage of the ABLE Act in the 111th Congress. That term ended without passage of ...