Community Support Network Archives | Page 2 of 2

We Rock The Spectrum Family Day

By NFXF|2016-12-09T09:09:08-05:00Dec 9, 2016|Community Support Network, St. Louis, St. Louis Events|

[mpc_image preset="preset_2" image="26090" margin_divider="true" margin_css="margin-bottom:15px;" image_size="700_thumb" image_opacity="100" effect="none" image_hover_opacity="100" mpc_ribbon__disable="true" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="1200" animation_in_delay="600"]On Sunday, December 4 the Fragile X Resource Center of Missouri hosted an afternoon full of ziplining, bouncing, painting, swinging and dressing up [...]

2015 Community Support Network Awards

By NFXF|2015-10-08T14:19:45-04:00Oct 8, 2015|Community Support Network|

The Awards began in 2014 as a way to recognize the incredible work and dedication of our CSN groups and leaders. There are four categories: Most Innovative Event Up & Comers of the [...]

Fragile X Families Fostering Real Relationships

By NFXF|2018-12-01T16:31:02-05:00Apr 6, 2015|Community Support Network, Hope & Inspiration, Northern Arizona, Phoenix, Xpressions|

The world can look like a lonely place when you first learn that Fragile X runs in your family. That is why one of the first things we tell people who receive a diagnosis is [...]

Introducing… The Community Support Network

By NFXF|2014-03-02T06:57:45-05:00Mar 2, 2014|Community Support Network|

One of the most meaningful experiences for a Fragile X family is to meet another family and know you are not alone in this journey. At the National Fragile X Foundation, our mission is to serve you by connecting and supporting individuals and families through our family support network.

Walking, Running, and Hiking for a Cause! And the 2012 Annual Report!

By NFXF|2013-06-19T12:38:56-04:00Jun 19, 2013|Appalachians, Community Support Network, Fundraiser, Northern Virginia, St. Louis, Tri Cities|

Focus on Fundraisers If you haven’t heard by now, we are hosting our first annual “Let ‘Em Know Virtual 5k Run/Walk for Fragile X” in honor of National Fragile X Awareness month in July! Thanks [...]

LINKing Up for Summer Social Events!

By NFXF|2013-06-03T09:21:58-04:00Jun 3, 2013|Community Support Network|

Central CA FX Links Group enjoys its first event! Summer is almost here and our LINKS groups are in full swing with lots of summer activities! The events calendar has been filling up [...]

LINKS: Families Were Bowled Over With Excitement & More!

By NFXF|2013-02-05T20:41:10-05:00Feb 5, 2013|Community Support Network, Greater Chicago|

The LINKS group held its Third Family Bowling Event on January 26—intentionally planned in between the football conference playoffs and the Superbowl! Organized by LINKS leader Missy Zolecki, it brought together about 150 people from [...]

LINKS Gets Into Gear for the New Year!

By NFXF|2013-01-02T13:14:41-05:00Jan 2, 2013|Community Support Network|

2012 was the most active year ever in the LINKS Support Network program, with everything from monthly Saturday gatherings for coffee to statewide awareness walks dotting the calendar. In addition to actively participating at the International Conference, many LINKS groups held local educational conferences for families and professionals in their communities. We also saw a lot of growth in the LINKS network, with eight new groups forming and two groups changing leadership. All this activity helped us reach out to more families across the U.S. than ever before.

New LINKS Groups Sprouting Across the Country!

By NFXF|2012-10-31T12:46:41-04:00Oct 31, 2012|Community Support Network, Fragile Xtras|

The is a wonderful way to get involved in the Fragile X community on a local level, to meet new families, share experiences, work together to raise awareness, advocate, fund raise, build friendships [...]

These Fragile X groups want to know more about you

By NFXF|2011-10-05T09:22:07-04:00Oct 5, 2011|Call for Action, Community Support Network|

Several of our Fragile X LINKS Groups have short online surveys for local families to take so that they can stay up to date with your needs and interests. Your feedback is important [...]