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Blog2020-09-08T11:03:26-04:00

The NFXF Blog

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Study: Our Fragile X World Registry

By |Apr 21, 2020|

Our Fragile X World collects data from families using online surveys and in-person studies. Topics covered include sensory or behavioral challenges, health care experiences, and the impact of Fragile X on families.

How Do We Cope with the Current Circumstances

By |Apr 14, 2020|

In this new recording, Marcia Braden discusses strategies for daily living with COVID-19. She discusses how anxiety can fuel behavior, and she gives ideas on how to set up your day and accommodations you can make to help keep anxiety at a minimum.

How To’s of Sensory Diets in Fragile X Syndrome

By |Apr 13, 2020|

How To's of Sensory Diets in Fragile X Syndrome is the new video for this special time from Tracy Stackhouse from Developmental FX. A sensory diet is an occupational therapy intervention strategy devised to attain and maintain appropriate arousal states throughout each day. 

My Child is Home… Now What?? Play Skills

By |Apr 7, 2020|

In this webinar, Rebecca Shaffer guides us through some pointers about how to build play skills while your children are at home, and some great resources for thinking through different play opportunities while they’re at home.

When Disappearing Acts Are a Good Thing

By |Apr 2, 2020|

Behavior can often be misunderstood and punished because the parent or caregiver doesn’t recognize its function for the child. Caregivers must look behind the behavior to learn what they’re trying to communicate.

We’re Here to Help During This Extraordinary Time

By |Mar 26, 2020|

LINDA SORENSEN — With most of us staying at home now, we’re committed to providing you with the most timely and meaningful educational resources we have available. This includes sharing a series of articles, video series, and webinars.

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