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The NFXF Blog


LIVE: X Strides Closing Ceremony

By |Jul 29, 2021|

Join us for the live, virtual closing ceremony of the 2021 X Strides. We will have prizes, awards, and more. It is a can't miss event! Thank you to everyone who helped raise awareness for Fragile X.

NFXF Webinar Series: Collaborate with Us

By |Jul 29, 2021|

Collaborate with us. Families learn how behavior, communication, and sensory processing are connected. Further, families are provided with sensory, communication, and behavioral strategies that can be implemented within daily routines. An emphasis on collaborative and evidence-based practices is highlighted.

How is Fragile X syndrome inherited?

By |Jul 15, 2021|

This infographic and two-minute tip video answer the question, How is Fragile X syndrome inherited. It is one of the most common questions about Fragile X.

Tips for Flying on an Airplane

By |Jun 30, 2021|

Traveling with your child with Fragile X syndrome (FXS) on an airplane can be very stressful for both of you. These tips are provided by parents based on their experiences with their own children. Find what works for you, your child, and your family.

Webinar: Using Mindfulness and Acceptance Techniques to Reduce Stress

By |Jun 24, 2021|

Dr. Anne Wheeler will provide an overview of the literature on stress vulnerability in women with a premutation, describe how mindfulness-based techniques can be helpful for stress-reduction, allow for some experiential practice of these techniques, and provide practical resources for increasing mindfulness, reducing stress, and improving overall well-being.

Tell Us About An Xtraordinary Employee

By |Jun 16, 2021|

his year, as part of our awareness efforts, we are sharing about individuals with Fragile X syndrome who are working – paid, volunteer, full-time, part-time, and more. We want to raise awareness of the value of employment of individuals with intellectual and developmental disabilities for the employee, employer, and their coworkers.

In Memory of Steve Warren

By |Jun 9, 2021|

As a geneticist and academic, Warren’s contributions to the understanding of Fragile X and to the broader Fragile X community are immense. In addition to being a gifted scientist, he was an outstanding leader, mentor, and friend who will be greatly missed.