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The NFXF Blog

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An Xtraordinary Employee: Clay

By |Oct 19, 2021|

A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.

Understanding a Fragile X Intermediate Result

By |Oct 15, 2021|

Adult neurologists and reproductive specialists increasingly recommend Fragile X testing, as awareness has grown about FXTAS and FXPOI. Fragile X carrier testing during pregnancy has also become relatively commonplace in the US and elsewhere, even for women without a family history suspicious for Fragile X disorders.

8 Employee Attributes to Teach Your Young Adult

By |Oct 13, 2021|

Getting a new job is exciting, but young adults with Fragile X syndrome need to also understand what's expected of them at a workplace. Help them prepare by first understanding these eight guidelines.

Clinical Trial RECONNECT: ZYN002 Gel

By |Oct 7, 2021|

This study will evaluate the efficacy and safety of ZYN002, a clear cannabidiol (CBD) gel that can be applied to the skin (called transdermal application) twice a day for the treatment of behavioral symptoms of Fragile X syndrome (FXS).

NFXF Webinar: 2021 Industry Updates

By |Sep 20, 2021|

We held an NFXF Webinar with three of our industry partners working on treatments for Fragile X syndrome. Each shared the most up-to-date information on their research project(s) in a way that is understood by those who aren’t steeped in drug research day in and day out. A short Q&A followed each presentation.