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The NFXF Blog

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BRIDGE Study: Brain Indicators of Development Growth

By |Feb 7, 2022|

A longitudinal research study from The Wilkinson Lab at the Boston Children’s Hospital Labs of Cognitive Neuroscience to learn about how differences in brain activity affect learning, language, and behavior in Fragile X Syndrome.

The ABLE Employment Flexibility Act

By |Jan 13, 2022|

The ABLE Employment Flexibility Act (H.R. 4672) permits employers to contribute to an employee’s ABLE account instead of a 401(k) – including an employer’s match. By saving it in the ABLE account it will not adversely affect most means-tested federal benefits.

Mosaicism in Males with Fragile X Syndrome

By |Dec 28, 2021|

FORWARD // Participants with methylation mosaicism tended to have less severe intellectual disability and better social and functional skills. Knowing more about how FXS differs in people with and without methylation mosaicism may eventually help guide expectations and treatment of individuals with FXS.

Why Laurie, Will, and Caroline Bridges Support the NFXF

By |Dec 13, 2021|

The Bridges have been supporting the Fragile X community for years. They took a few minutes this month to tell you why and encourage you to join them in supporting the work of the National Fragile X Foundation this month. Hear what they have to say.

It’s All About Employ-Ability!

By |Nov 12, 2021|

Paula Fasciano and friends opened Bake Ability so they could give employment opportunities to individuals with intellectual and developmental disabilities.