Community is one of the three pillars of what the National Fragile X Foundation exists to do. Knowing there are others impacted by Fragile X out in the world and sharing your challenges and triumphs is incredibly empowering.
We urge you to connect with others on Facebook, Twitter, and Instagram. The advice, personal stories and friends you make will keep you strong, competent and confident in dealing with all things Fragile X.
Additionally, we at the NFXF are here to help provide support and education. Do you have a question? Do you need information?
Please call: 800-688-8765 from 9:00 am – 5:00 pm PT
Or email: firstname.lastname@example.org
Wherever you are on your journey, the NFXF has a team of people who are here to help you in whatever way works best for you!
Getting involved in the CSN is also a wonderful way to give back to the Fragile X community. You’ll find out how much fun it is to fundraise with others through walks, flower sales, pumpkin parades, etc. Many of our CSN members provide the community with educational seminars, help with IEP’s and even organize trips to the National Fragile X Foundation’s Advocacy Day, which empowers members.
Sibling & Self-Advocate Group
The NFXF offers a nationwide sibling and self-advocate group for individuals and siblings of individuals living with Fragile X. If you or one of your siblings is living with Fragile X and would like to join a group of like-minded individuals, the Sibling and Self-Advocate Group is for you!
If there is not a CSN group located near you, or if you are simply looking for another parent or caregiver to talk to, the NFXF has a list of Parent Contacts you can reach. Parent Contacts are available to help answer questions and offer support, especially to those with newly diagnosed children.
Fragile X Clinic & Research Consortium
If you are seeking medical support related to Fragile X, please visit the Fragile X Clinic & Research Consortium (FXCRC). The FXCRC is partnered with the CSN to bring you both the emotional and medical support that you need.
Contacting the CSN
If you have questions about the CSN or are looking for information on a local group, please email email@example.com.
The locations on this map are meant only to show the city of each CSN group, not exact locations.