Community is one of the three pillars of what the National Fragile X Foundation exists to do. Knowing there are others impacted by Fragile X out in the world and sharing your challenges and triumphs is incredibly empowering.
We urge you to connect with others on Facebook, Twitter, and Instagram. The advice, personal stories and friends you make will keep you strong, competent and confident in dealing with all things Fragile X.
Additionally, we at the NFXF are here to help provide support and education. Do you have a question? Do you need information?
Please call: 800-688-8765 from 9:00 am – 5:00 pm ET
Or email: email@example.com
The bedrock of the NFXF community is our Community Support Network.
The Community Support Network (CSN) is the mission delivery arm of the NFXF, comprised of volunteer led Chapters, Community Partners, and Parent Contacts. The dedicated parent volunteers who lead the CSN provide emotional and educational support to families and individuals living with Fragile X.
Chapters are volunteer led groups that are officially affiliated with the NFXF. Chapters organize fundraisers to support the mission, provide educational and awareness opportunities to families and support Fragile X Clinics.
Community Partners are independent, tax exempt organizations that collaborate with the NFXF to support the Fragile X Community, raise awareness, and offer educational opportunities to families in their geographic area. These groups are primarily run by volunteer parents, and they are not formally affiliated with the NFXF.
Parent Contacts are volunteers (individuals or groups) who are available to help answer questions and offer support, especially to those with newly diagnosed children.
If you are not yet a member of your local CSN, now is the time to reach out! Get involved with activities like Nights Out that focus on moms, dads – even siblings. Attend social activities like picnics, bowling outings and trips to museums. Participate in local education opportunities through the CSN Learning Series. Sign up for an X Strides walk near you and help raise funds to support the mission. Join others in support group meetings and get to know others who understand the issues you are facing. To volunteer, submit firstname.lastname@example.org.
Your local chapter welcomes you to get involved by volunteering to help organize activities. Getting involved in the CSN is also a wonderful way to give back to the Fragile X community. You will find out how much fun it is to fundraise with others through walks, flower sales, pumpkin parades, etc. Many of our CSN members provide the community with educational seminars, help with IEPs and even organize trips to the National Fragile X Foundation’s Advocacy Day.
Check out the interactive map below that will help you locate the nearest community resource. If there isn’t one in your area, we can help you start one. To let us know you are interested, just email: email@example.com
Sibling & Self-Advocate Network
The NFXF offers opportunities for individuals and siblings of individuals living with Fragile X to connect. If you or one of your siblings is living with Fragile X and would like to join a group of like-minded individuals, the Sibling and Self-Advocate Group is for you! Contact: firstname.lastname@example.org
Fragile X Clinic & Research Consortium
If you are seeking medical support related to Fragile X, please visit the Fragile X Clinic & Research Consortium (FXCRC). The FXCRC is partnered with the CSN to bring you both the emotional and medical support that you need.
Contacting the CSN
If you have questions about the CSN or are looking for information on a local group, please email email@example.com.
|Fragile X Resource Center of Missouri||NFXF Chapter||St. Louis, Missourifirstname.lastname@example.org|
|NFXF Greater New York City Chapter||NFXF Chapter||Brooklyn, New York||NewYorkCity@fragilex.org|
|NFXF Connecticut Chapter||NFXF Chapter||West Hartford, Connecticut||860-233-1904 | Connecticut@fragilex.org|
|NFXF Heartland Chapter - Iowa and South Dakota||NFXF Chapter||Ankeny, Iowa||Heartland@fragilex.org|
|NFXF Kansas Chapter||NFXF Chapter||Olathe, Kansas||Kansas@fragilex.org|
|NFXF Louisiana Chapter||NFXF Chapter||Marksville, Louisiana||318-500-9315 | CentralLA@fragilex.org|
|NFXF Vermont Chapter_||NFXF Chapter||Jericho, Vermont||Vermont@fragilex.org|
|NFXF Central Alabama Chapter||NFXF Chapter||Hoover, Alabama||CentralAL@fragilex.org|
|NFXF Central California Chapter||NFXF Chapter||Paso Robles, California||CentralCA@fragilex.org|
|NFXF Central Illinois Chapter||NFXF Chapter||Canton, Illinois||CentralIL@fragilex.org|
|NFXF Wisconsin Chapter||NFXF Chapter||Oak Creek, Wisconsin||414-690-3359 | Milwaukee@fragilex.org|
|NFXF Arizona Chapter||NFXF Chapter||Phoenix, AZ email@example.com|
|NFXF Northern California Chapter||NFXF Chapter||San Francisco, California||NorthernCA@fragilex.org|
|NFXF Minnesota Chapter||NFXF Chapter||St. Cloud, Minnesota||Minnesota@fragilex.org|
|NFXF Southeast Pennsylvania Chapter||NFXF Chapter||Berwyn, Pennsylvania||SoutheastPA@fragilex.org|
|NFXF Greater Atlanta Chapter||NFXF Chapter||Roswell, Georgia||GreaterAtlanta@fragilex.org|
|NFXF Nebraska Chapter||NFXF Chapter||Omaha, Nebraska||Nebraska@fragilex.org|
|NFXF New Jersey Chapter||NFXF Chapter||Morganville, New Jersey||NewJersey@fragilex.org|
|NFXF South Carolina Chapter||NFXF Chapter||Columbia, South Carolina||SouthCarolina@fragilex.org|
|NFXF Tri-State Chapter||NFXF Chapter||Erlanger, Kentucky||859-342-8150 | Cincinnati@fragilex.org|
|NFXF Western Massachusetts Chapter||NFXF Chapter||Hadley, Massachusetts||413-584-1859 | WesternMA@fragilex.org|
|NFXF Washington State Chapter||NFXF Chapter||Olympia, Washingtonfirstname.lastname@example.org|
|NFXF Southeast Virginia Chapter||NFXF Chapter||Newport News, Virginia||757-223-6254 | SoutheastVA@fragilex.org|
|NFXF Oregon Chapter||NFXF Chapter||Salem, OR, USA|
|Colorado Fragile X||Community Partner||Centennial, Colorado||720-841-5489 | email@example.com|
|Families for Fragile X||Community Partner||Coral Gables, Florida||305-992-4430 | firstname.lastname@example.org| familiesforfragilex.com|
|Fragile X Alliance of Ohio||Community Partner||Solon, Ohio||http://fragilexohio.org/|
|Fragile X Alliance of Texas - Houston||Community Partner||Kingwood, Texas||LaurieBridgesOT@hotmail.com|
|Fragile X Alliance of Texas - San Antonio||Community Partner||San Antonio, Texasemail@example.com|
|Fragile X Association of Michigan||Community Partner||Sterling Heights, Michigan||313-881-3340 | firstname.lastname@example.org| www.fxam.org|
|Fragile X Association of Southern California||Community Partner||Burbank, California||818-754-4227 | email@example.com|https://fraxsocal.org|
|Texas Fragile X Association||Community Partner||Irving, Texas||972-757-8939 | www.txfx.org|
|NC Fragile X Foundation Community Support Network||Community Partner||Cary, NC, USA|
|Greater Chicago Fragile X||Parent Contact||Plainfield, Illinois||Chicago@fragilex.org|
|Maryland Fragile X Resource Group||Parent Contact||Brookville, Maryland||CentralMD@fragilex.org|
|North San Diego||Parent Contact||San Diego, California||760 859 6643 | firstname.lastname@example.org|
|Marie Horowitz||Parent Contact||New City, New York||845-638-2498 | email@example.com|
|Steve & Gwen Jagde||Parent Contact||Ardsley, New York||914-674-4480 | firstname.lastname@example.org|
|Nancy Hertzig||Parent Contact||Tilson, New York||845-658-9201 | email@example.com|
|Katie Berladi, MS, CCC-SLP||Parent Contact||Pittsburgh, Pennsylvania||412-327-6654 | PittsburghCSN@gmail.com|
|Leslie Bobrowski||Parent Contact||Cumberland, Rhode Island||401-658-1936 | firstname.lastname@example.org|
|Darlene Donovan||Parent Contact||Derry, New Hampshire||603-965-3502 | email@example.com|
|Tricia Crew||Parent Contact||French Lick, Indiana||812-936-7170 | firstname.lastname@example.org|
|Barbara & Phil Porterfield||Parent Contact||Charles Town, Wet Virginia||304-725-3279 | email@example.com|
|Joey Christoff & Catherine Frey||Parent Contact||Fort Wayne, Indiana||260-466-1223 | firstname.lastname@example.org|
|Lewis & Lynne Wolfe||Parent Contact||Georgetown, Kentucky||502-863-6653 | email@example.com|
|April White||Parent Contact||Columbia, Tennessee||931-626-1721 | firstname.lastname@example.org|
|Jerri Deem||Parent Contact||Marietta, Ohio||740-336-9165 | email@example.com|
|Beth_Lake||Parent Contact||West Harrison, Indiana||812-637-3192 | firstname.lastname@example.org|
|Gwen McCloud||Parent Contact||Woodleaf, North Carolina||704-307-9471 | email@example.com|
|Leeanne Rau||Parent Contact||Birmingham, Alabama||205-978-4230 | firstname.lastname@example.org|
|Randy Green||Parent Contact||Boynton Beach, Florida||561-509-6420 | email@example.com|
|Rosie Perez||Parent Contact||Miami, Florida||305-342-6415 | firstname.lastname@example.org|
|Sheri Dickerson||Parent Contact||Blue Mountain, Mississippi||662-587-0438 | email@example.com|
|Bonni Ortegon||Parent Contact||San Antonio, Texas||210-685-7972 | firstname.lastname@example.org|
|Tammy Jones||Parent Contact||Boise, Idaho||208-830-6666 | email@example.com|
|Amy_Young||Parent Contact||Honolulu, Hawaii||703-626-1282 | firstname.lastname@example.org|
|Sonja Goedde||Parent Contact||Anchorage, Alaska||907-250-3969 | email@example.com|
|Ginger Stringer||Parent Contact||Colorado Springs, Colorado||719-391-2249 | firstname.lastname@example.org|
|Nanette McCall||Parent Contact||Sparks, Nevada||775-331-7248 | email@example.com|
|Fragile X of Central Arkansas||Parent Contact||Vilonia, Arkansas||CentralAR@fragilex.org|
The locations on this map are meant only to show the city of each group, not exact locations.