How to Reach Us

Hilary Rosselot, Director, Research Facilitation

Hilary Rosselot

Jayne Dixon Weber, Director, Community Education

Jayne Dixon Weber

Robby Miller, Director, Clinic & International Relations

Robby Miller

Amie Milunovich, FORWARD National Coordinator

Amie Milunovich

Kristin Bogart, Director of Development

Kristin Bogart

Missy Zolecki, Director, Community Engagement

Missy Zolecki

Linda Sorensen, Executive Director

Kim Toman

Learn more about us, including our board of directors, Scientific and Clinical Advisory committee members, and emeritus directors.

We’re here for you. If you have questions, need help, or just want to share, we’re here Monday thru Friday, 9AM to 5PM ET, with the usual holidays as exceptions.

  1. Call us at (202) 594-8376 or toll-free at (800) 688-8765
  2. Send us an email
  3. Write us:
    National Fragile X Foundation
    1012 14th Street NW, Suite 500
    Washington, DC 20005
  4. Use our form below

However you decide to contact us, one of our team members will reply and help you with your questions and concerns. Please also scroll down to see more ways to connect.

Availability

We’re here Monday thru Friday, 9AM to 5PM ET, with the usual holidays as exceptions. If you leave a phone message and would like us to return your call, please state your phone number clearly — and it’s a good idea to repeat it just in case.

Email: treatment@fragilex.org
Phone: (800) 688-8765

What to Expect

Whether you leave us a message, email us, or use our form below, one of our team members will reply and help you with your questions and concerns.

Meet Our Team ↓
Linda Sorensen, Executive Director

Linda Sorensen

Robby Miller, Director, Clinic & International Relations

Robby Miller

Jayne Dixon Weber, Director, Community Education

Jayne Dixon Weber

Missy Zolecki, Director, Community Engagement

Missy Zolecki

Hilary Rosselot, Director, Research Facilitation

Hilary Rosselot

Kristin Bogart, Director of Development

Kristin Bogart

Amie Milunovich, FORWARD National Coordinator

Amie Milunovich

More Ways to Connect

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Community Support Network
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“Hang in there. There is a lot of help out there — seek it out. It can be a roller coaster at times but so worth it.”

—a fragile x mom