Financials and Impact Reports

Impact Reports

Our impact is made possible by your donations, volunteer work, and continued participation.
NFXF 2024 Impact Report
28 pages,
Updated 05/01/2025
Our year-in-review looks at how we served the community in 2024 within our four mission priorities: Advocacy, Education, Research, and Treatment.
NFXF 2023 Impact Report
20 pages,
Updated 05/01/2024
Our year-in-review looks at how we served the community in 2023 within our four mission priorities: Advocacy, Education, Research, and Treatment.
NFXF 2022 Impact Report
38 pages,
Updated 05/01/2023
Our year-in-review looks at how we served the community in 2022 within our four mission priorities: Advocacy, Education, Research, and Treatment.

Financials

The National Fragile X Foundation was founded in 1984 as a public, non-profit 501(c)(3) charitable organization. We are funded through individual contributions.

Financial Statements

Our independently audited financial statements and IRS Form 990 are provided so you can see how your donations support Fragile X families through community, education, awareness, and research.

IRS 990
42 pages,
Updated 07/01/2025
An IRS Form 990 is an annual informational return for tax-exempt organizations.
Audited Financial Statement
16 pages,
Updated 12/31/2024
An audited financial statement is a formal financial document that has been examined and verified by an independent, registered Certified Public Accountant (CPA).

Non-Profit Certification

The NFXF is authorized to operate as a non-profit in all 50 states, territories, and the District of Columbia. Our federal 501(c)(3) and Florida certifications are provided.

Federal 501(c)3 Certification
1 pages,
Updated 07/01/2025
Federal 501(c)(3) certification is an IRS tax designation that grants non-profit organizations federal tax-exempt status.
Florida Certification
1 pages,
Updated 07/01/2025
This notice serves as a reminder that the Solicitation of Contributions Act requires registered charities to conspicuously display their registration number and the disclosure statement.

Non-Profit Charity Ratings

Charity Navigator Four-Star Rating

The Platinum Seal of Transparency is the highest level of recognition from Candid, the worldʼs largest source of information about nonprofit organizations (formerly GuideStar). It places an organization in the top 0.1% of charities in the United States for transparency and indicates a nonprofit organization is transparent about its goals, strategies, achievements, and progress.

Our Charity Navigator score is 100%, earning it a Four-Star rating. This overall score is calculated from multiple beacon scores, weighted as follows: 90% Accountability & Finance, 10% Leadership & Adaptability.

Please note that our badges shown above will change automatically if our score changes, but the information about each is done manually and may not match the current rating. For the most accurate information, view each of our ratings pages on Candid and Charity Navigator.

Questions?

Please contact us with any questions.

National Fragile X Foundation
1012 14th Street NW, Suite 500
Washington, DC, 20005

Executive Director: Hilary Rosselot

Phone: (202) 747-6210
Toll Free: (800) 688-8765
Email: contact@fragilex.org or use our contact form
EIN: 84-0960471