Find a Fundraiser
Our community of fundraisers leverages their personal networks to support our mission to serve the entire Fragile X community to live their best lives.
Current Community, Peer-to-Peer, and In Honor or Memory Fundraising Campaigns
Individual fundraising campaigns are driven by families, friends, and loved ones united by a shared commitment to making a difference for the Fragile X community. Whether you’re honoring someone special, celebrating a milestone, or inspired to give back, your efforts support families affected by Fragile X syndrome and the Fragile X premutation—making an impact starting today.
If you have any questions about how to set up a personal fundraising campaign or event, please contact Kristin at kristin@fragilex.org.
In Loving Memory of My Husband, Thomas Carollo
Watching Tom lose his independence was heartbreaking. FXTAS — Fragile X-associated tremor/ataxia syndrome — gradually took away his mobility and his ability to care for himself. In his final year, everyday tasks became difficult, then impossible without help.
I cared for him at home with love, wanting him to feel comfortable and respected through every change. But FXTAS was unfamiliar to many of the professionals treating him, and we struggled to find answers and guidance. No family should feel so lost while caring for someone they love.
I’m thrilled to be participating in the 2026 Xtreme Hike, October 8-11, 2026, a fundraiser supporting the National Ataxia and National Fragile X Foundations! I will be hiking rim-to-rim in the Grand Canyon to support these great organizations. I’m passionate about this cause and need your help! Every donation — big or small — helps me reach my fundraising goal and directly impacts this important cause.
Joey Christoff started the Fishing for a Cure tradition in 2014 in honor of his son, Mitchell, who has Fragile X syndrome, and for his wife and mother-in-law, who are carriers at risk of Fragile X-associated disorders. So far, this beloved event has raised more than $102,000 for Fragile X advocacy, education, research and treatment.
What will you do for Fragile X? Join a community of volunteers who are raising awareness, building momentum, and making a meaningful difference—while having fun along the way.
Starting your own fundraiser is simple. Choose a challenge, activity, or personal goal, and turn your passion into impact—helping ensure individuals and families affected by Fragile X have the brightest possible future.
Support the NFXF in Honor or Memory of a Loved One
You can create your own giving page, and what better way than in honor or memory of someone important in your and your family’s lives. Create your memorial fundraiser.
Looking for a specific fundraiser? Search memorial fundraisers.
Help the family of Amy Chivington Findley honor her life as a daughter, sister, wife, mother, grandmother, and teacher with a gift to the NFXF.
Help the David Miller family honor him and their mother, and are asking for donations to NFXF in lieu of flowers.
Fundraising Resources
Fundraising Fact Sheet
A one-page fact sheet on how you can make an impact on our mission.
Fundraising Toolkit
Easy-to-follow steps on setting up your own fundraising team or page.
X Strides 5K Toolkit
A how-to guide for planning and fundraising an in-person walk or run (or your favorite) event.
Start Your Memorial Fundraiser
It’s easy to set up and takes just a few minutes.
Start Your #AnythingForFragileX Fundraiser
Join the movement, create your own unique fundraiser, and make a difference for the Fragile X community.
Event Recaps
Read all about previous community events and fundraisers.