NFXF Blog

Congratulations to our 2026 Junior Investigators! We are SO excited to have such brilliant minds in the Fragile X field. The NFXF is proud to support these Junior Investigators and build the next generation of Fragile X experts.

Shionogi provides updates on the EXPERIENCE adult and adolescent studies in Fragile X syndrome, and is hosting a community Q&A session on May 19 at 12 pm ET.

This research looks at social participation in children with Fragile X syndrome, including key barriers, gender differences, and practical ways families, schools, and communities can support inclusion and engagement.

Fragile X has once again been included in the FY26 Peer-Reviewed Medical Research Program (PRMRP) authorized topic list. This continued inclusion ensures that researchers can apply for Department of War awards supporting innovative, high-impact Fragile X research of clear scientific merit.

A Message from Harmony Biosciences about the RECONNECT Trial and the conclusion of its Open Label Extension (OLE) program

The clinic at the Masonic Institute for the Developing Brain offers personalized evaluation, consultation, treatment, and support for children and adults with Fragile X syndrome and related conditions.

Aaron’s story shows why early Fragile X awareness changes lives. Discover how NFXF is launching new caregiver support programs—and how your gift can help.

Meet Maya, whose journey shows what’s possible for females with Fragile X. Discover how NFXF and the LivJoy Foundation are expanding support, awareness, and opportunity.

Joey Christoff and his family host this multi-day fishing competition at their Hilton Head, South Carolina, home, turning a world-renowned vacation destination into a fundraising powerhouse.