NFXF Blog

Travel can feel overwhelming — especially when routines change, environments are different, and there is a lot of unexpected input happening around you. We pulled together some resources to support your trip to the 20th International Fragile X Conference in Louisville, KY, this July, but they can be adapted for any upcoming travel.

Updates about recent federal policy discussions and what they may mean for Fragile X research, healthcare, education, and support services.

Learn about CDMRP funding opportunities for research on Fragile X-associated conditions and disorders, including application deadlines, key award mechanisms, and how the NFXF supports researchers.

Moms gathered last week to provide support for one another and share about their family members living with Fragile X.

Congratulations to our 2026 Junior Investigators! We are SO excited to have such brilliant minds in the Fragile X field. The NFXF is proud to support these Junior Investigators and build the next generation of Fragile X experts.

Shionogi provides updates on the EXPERIENCE adult and adolescent studies in Fragile X syndrome.

This research looks at social participation in children with Fragile X syndrome, including key barriers, gender differences, and practical ways families, schools, and communities can support inclusion and engagement.

Fragile X has once again been included in the FY26 Peer-Reviewed Medical Research Program (PRMRP) authorized topic list. This continued inclusion ensures that researchers can apply for Department of War awards supporting innovative, high-impact Fragile X research of clear scientific merit.

A Message from Harmony Biosciences about the RECONNECT Trial and the conclusion of its Open Label Extension (OLE) program