NFXF Blog

Moms gathered last week to provide support for one another and share about their family members living with Fragile X.

Joey Christoff and his family host this multi-day fishing competition at their Hilton Head, South Carolina, home, turning a world-renowned vacation destination into a fundraising powerhouse.

Jay and Anne Souder have done it again with their annual golf event and fundraiser, “FORE! Fragile X,” and we have the pictures!

On Tuesday, July 22, the Rhode Island State House held a special lighting called Lighting the Way for Fragile X in honor of National Fragile X Awareness Day. And, of course, all of the Little Rhody Warriors were there!

Nancy Carlson and the NFXF Heartland Chapter — Iowa and South Dakota hosted their 10th Annual Bike To X Out Fragile X on Saturday, June 7, 2025, in Des Moines, Iowa.

Little Rhody Warriors families held their second annual “Fragile X Awareness Walk” on May 18 in Warwick, Rhode Island. More than 50 family members, caregivers, and friends participated in this X Strides event.

Rhode Island families gathered for a night out at a local restaurant on April 12th to share experiences and stories.

The Haugen’s third Fragile X Christmas Party was another smashing success. Their fundraising goal was $25,000, and they raised a whopping $36,420.

The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, was another great success in 2024! Check out the big fish and the big smiles.