Community Fundraisers
The Fragile X community is committed to raising awareness and supporting advocacy, education, research, and treatment for all affected by Fragile X.
Our community of fundraisers leverages their personal networks of friends, family, colleagues, and others to support our mission: to serve the entire Fragile X community to live their best lives by providing the knowledge, resources, and tools until, and even after, more effective treatments and a cure are achieved.
Featured Fundraisers
Anyone can start fundraising as an individual or as part of a team. NFXF creates fundraisers for various events throughout the year, including X Strides, Giving Tuesday, Advocacy Day, Fragile X Awareness Day, Anything for Fragile X!, year-end giving, and the upcoming NFXF 20th International Fragile X Conference. We also partner with community advocates to help build and publicize fundraising events.
What would YOU do for Fragile X? Join the movement to raise awareness, inspire action, and make a difference for the Fragile X community!
Make a donation or start your own fundraiser by choosing a challenge, activity, or goal and dedicate your fundraiser to research, treatment, education, advocacy, or in honor of someone Xtraordinary in your life.
Joey Christoff started the Fishing for a Cure tradition in honor of his son, Mitchell, who has Fragile X syndrome, and for his wife and mother-in-law who are carriers at risk of Fragile X-associated disorders.
This year’s event is scheduled for October 17-21 and October 21-25, 2026.
Join us July 16-19! Whether you want to attend or simply support the conference, this biennial event presents a unique opportunity for nearly 1,000 parents and professionals from around the world to gather and learn the latest about Fragile X.
Learn more about attending, supporting, and sponsoring this important event.
Support the NFXF in Honor or Memory of a Loved One
You can start your own fundraiser, and what better way than in honor or memory of someone important in your and your family’s lives. It’s easy to set up and takes just a few minutes.
Start Your Memorial Fundraiser
Help the Caselton family support the Fragile X community in honor of Mark ‘Boot’ Caselton.
Help Lauren Buck’s family raise funds to support the NFXF in memory of Mae Miller.
Help Emily Mack raise funds to support the NFXF in honor of Brent Chivington.
Help Tiffany Steiner raise funds in honor and in memory of her best friend’s siblings.
Help the David Miller family honor him and their mother, and are asking for donations to NFXF in lieu of flowers.
Help the family of Marilyn Kelly, an amazing wife and mom, honor the memory of “Nana.” Read their story.
More Resources
Fundraising Fact Sheet
A one-page fact sheet on how you can make an impact on our mission.
Fundraising Toolkit
Easy-to-follow steps on setting up your own fundraising team or page.
X Strides 5K Toolkit
A how-to guide for planning and fundraising an In-person walk or run event.