Join NFXF South Carolina chapter leaders, Faye and Roger Kuperman along with other parents, families, self-advocates, state officials and researchers on as they bring awareness to Fragile X syndrome and all Fragile X-associated conditions and disorders.
The Fragile X Reseach and Treatment Center at Cincinnati Children's Hospital is hosting a 2023 Cincinnati Fragile X Family Conference! Top experts will be presenting on a broad range of topics!
Join the NFXF Greater Chicago chapter and other families for a casual walk and play time. All are welcome! Event Details: Date: Saturday, July 22, 2023 Time: 9:00 AM Location: Gallery Park |2001 Patriot Blvd.., [...]
Join the North Carolina Fragile X Foundation as they host a conversation with Mark Benton, Chief Deputy Secretary of Health, DHHS, and Kelly Crosbie, Director, North Carolina Division of Mental Health, Developmental Disabilities and Substance [...]
The SSAN invite you to pick out your favorite hat, bow, set of Disney ears, etc. and join fellow Siblings and Self Advocates! Everyone will have an opportunity to catch up with friends, tell [...]
Join the NFXF Connecticut Chapter for a family fun day at the JCC Swim & Tennis Club. Event Details: Date: Sunday, August 13, 2023 Time: 11:00 AM - 4:00 PM Location: JCC Swim & [...]
Join us as we host a panel of professionals from various backgrounds as they discuss educational strategies for success throughout the lifespan!
Join us as we host a panel of professionals from various backgrounds as they discuss the broad topic of Reproductive Health!
The NFXF Greater Chicago Chapter is organizing an early dinner for parents to connect and enjoy each other's company! This event is for parents/adults only. Event Details Date: September 9, 2023 Time: 4:00 PM [...]
There is a lot of work being done in the Fragile X research space! The NFXF is committed to keeping you up to date so you can consider available research opportunities for your family. [...]
SHOW YOUR SPIRIT! Join the Sibling and Self-advocate Network (SSAN) for their next monthly Zoom. Wear something that represents your hometown or school to show your spirit! Everyone will have the chance to catch [...]
Join the Greater Chicago Fragile X chapter for a sensory-friendly Zoo experience! On Sunday, September 24 from 8-10 AM, the Lincoln Park Zoo will hold sensory friendly hours. You can find more information about [...]
Swirl, smell and sip the evening away while supporting families living with Fragile X! With 50 wines to choose from, you will be sure to find a favorite! The evening will also include delicious [...]
The NFXF Western Massachusetts and Connecticut Chapters and the Sibling & Self-advocate Network (SSAN) are once again organizing an in-person opportunity to connect with others in the Fragile X community. Kelly Dunphy, co-leader SSAN, [...]
We continue to make strides in Fragile X research! Over the past 15 years, CDC has funded four FORWARD (Fragile X Online Registry With Accessible Research Database) Fragile X studies to expand understanding of [...]
