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Events

  • FX Family Pool Party

    JCC Swim & Tennis Club 4 Duncaster Road, Bloomfield, CT, United States

    The NFXF Connecticut Chapter is hosting a free event for FX families in and around Bloomfield, Connecticut. The Connecticut Chapter invites you to a pool party at the JCC Swim & Tennis Club, a great venue with lots to do. Lunch will be provided! To attend: Please email your RSVP to connecticut@fragilex.org. A great day […]

    Free
  • 2025 Monthly Webinar Series: Resources and Support around Grief and Loss

    Join the NFXF on September 17, 2025 as they host Susan Aaron, Caitlin Arndt, CCLS, Arlen Gaines, PhD, MSW, LCSW-C, APHSW-C, and Margaret Gilbride, JD, CT—who will share insights, strategies, and resources to help individuals and families navigate grief in the context of Fragile X.

  • Cork and Cafe 2025

    Esselon Cafe 99 Russell Street, Hadley, MA, United States

    Come try over 60 wines and enjoy wonderful appetizers supplied by our host. We will have a silent auction set up with local items. If you register online, you will be entered into a door prize pool. Online registration required. RSVP by September 25. You can also purchase tickets at Four Seasons Route 9 in […]

    $35
  • North Carolina Fragile X Foundation Family & Friends Picnic

    Lake Macintosh Park 2704 Huffman Mill Road, Burlington, NC, United States

    Join us for a day to reunite with our NC Fragile X community! The North Carolina Fragile X Foundation Board is pleased to host our annual Family & Friends Picnic. We look forward to seeing familiar and new faces! Please share this invitation with friends, family, or community members who want to join in on […]

    Free
  • Cincinnati Fragile X Research and Treatment Center 4th Annual Family Picnic

    Weston Shelter at Woodland Mound 8250 Old Kellogg Rd., Cincinnati, OH, United States

    Join the Cincinnati Fragile X Research and Treatment Center for our 4th Annual Family Picnic! We will be hosting family, friends, and staff for our clinic. We will have games and enjoy the outdoors! Food will be provided (and ice cream!). The event will be held at the Weston Shelter (covered event space) in the […]

  • 2025 Industry Updates Webinar

    Zoom

    Join us for our annual Industry Updates webinar. Representatives from Shionogi, Mirum Pharma, Kaerus Bioscience, and Servier Pharmaceuticals will share the latest on their Fragile X research and development efforts. Each organization will provide a brief update, followed by a moderated Q&A session. Don’t miss this opportunity to hear directly from our industry partners and […]

    Free
  • Family Event! Community Tree Trim at Brookfield Zoo

    Brookfield Zoo 8400 31st St., Brookfield, IL, United States

    Hi Greater Chicago families! Let’s have a family day at the zoo. Sunday, November 9, is the start of the 44th annual Holiday Magic at Brookfield Zoo. We have purchased a tree for the National Fragile X Foundation for Tree Trim at Brookfield Zoo Chicago so we can spread some awareness about Fragile X. Check […]

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