Past Events


South Carolina Fragile X Awareness at the State Capitol

South Carolina State Capitol 1100 Gervais St, Columbia, SC, United States

Join NFXF South Carolina chapter leaders, Faye and Roger Kuperman along with other parents, families, self-advocates, state officials and researchers on as they bring awareness to Fragile X syndrome and all Fragile X-associated conditions and disorders.

Cincinnati Fragile X Family Conference

Sabin Auditorium at Cincinnati Childrens Hospital Medical Center 3333 Burnet Avenue, Cincinnati, OH, United States

The Fragile X Reseach and Treatment Center at Cincinnati Children's Hospital is hosting a 2023 Cincinnati Fragile X Family Conference! Top experts will be presenting on a broad range of topics!


Greater Chicago Fragile X Walk

Gallery Park Glenview IL 2500 Chestnut Ave, Glenview, IL, United States

Join the NFXF Greater Chicago chapter and other families for a casual walk and play time. All are welcome! Event Details: Date: Saturday, July 22, 2023 Time: 9:00 AM Location: Gallery Park |2001 Patriot Blvd.., [...]

SSAN – Hat Day


The SSAN invite you to pick out your favorite hat, bow, set of Disney ears, etc. and join fellow Siblings and Self Advocates! Everyone will have an opportunity to catch up with friends, tell [...]

NFXF Connecticut Chapter – Family Pool Party

JCC Swim and Tennis Club 4 Duncaster Road, Bloomfield, CT, United States

Join the NFXF Connecticut Chapter for a family fun day at the JCC Swim & Tennis Club. Event Details: Date: Sunday, August 13, 2023 Time: 11:00 AM - 4:00 PM Location: JCC Swim & [...]


Greater Chicago Chapter – Parents Night Out

Yen Yen 4226 Arlington Heights, Arlington Heights, IL, United States

The NFXF Greater Chicago Chapter is organizing an early dinner for parents to connect and enjoy each other's company! This event is for parents/adults only. Event Details Date: September 9, 2023 Time: 4:00 PM [...]

NFXF Webinar Series- 2023 Industry Update


There is a lot of work being done in the Fragile X research space! The NFXF is committed to keeping you up to date so you can consider available research opportunities for your family. [...]

SSAN – Virtual Homecoming Game Day


SHOW YOUR SPIRIT! Join the Sibling and Self-advocate Network (SSAN) for their next monthly Zoom. Wear something that represents your hometown or school to show your spirit! Everyone will have the chance to catch [...]

Greater Chicago Fragile X Meet Up- Lincoln Park Zoo

Lincoln Park zoo 2400 N. Cannon Drive, Chicago, IL

Join the Greater Chicago Fragile X chapter for a sensory-friendly Zoo experience! On Sunday, September 24 from 8-10 AM, the Lincoln Park Zoo will hold sensory friendly hours. You can find more information about [...]


Cork and Cafe 2023

Esselon Cafe 99 Russell Street, Hadley, MA, United States

Swirl, smell and sip the evening away while supporting families living with Fragile X! With 50 wines to choose from, you will be sure to find a favorite! The evening will also include delicious [...]


CT, Western MA, & SSAN- Moms Night Out

California Pizza Kitchen 3 Westfarms Mall, E-125, Farmington, CT, United States

The NFXF Western Massachusetts and Connecticut Chapters and the Sibling & Self-advocate Network (SSAN) are once again organizing an in-person opportunity to connect with others in the Fragile X community. Kelly Dunphy, co-leader SSAN, [...]


We continue to make strides in Fragile X research! Over the past 15 years, CDC has funded four FORWARD (Fragile X Online Registry With Accessible Research Database) Fragile X studies to expand understanding of [...]