Sophia James, a top 10 finalist in the latest season of American Idol, talks about being a sibling to her brother James, who has Fragile X syndrome. There is so much in what she says — take the time to watch and read it. It’s well worth your time.
The National Fragile X Foundation is thrilled to announce that Sophia James (formerly Wackerman) will be a keynote speaker on day one — May 29, 2020 — of our upcoming 17th NFXF International Fragile X Conference.
Emily Mack remembers her first time at an NFXF Int'l Fragile X Conference. “The best part was that it was the first time where I truly felt like everyone around me just understood, without explanation of who we were, what Fragile X was, and the highs and lows that it can bring to everyday.” Read her story.
Thanks to the generosity of local NFXF chapters, community partners, and private donors, conference scholarships have been made available to assist those who might not otherwise be able to attend this year’s conference. DEADLINE: March 25, 2020
Ten $1,000 scholarships for Junior Investigators whose area of focus is Fragile X to be awarded for both basic and clinical science research. DEADLINE: February 24, 2020.
Watch the session with the male self-advocates at the 16th NFXF International Fragile X Conference.
NFXF Executive Director Linda Sorensen reflects on her experience at the 16th International Fragile X Conference held in Cincinnati 2018.
I am very excited to see fragile X stakeholders coming from around the world to attend the 2018 NFXF International Fragile X Conference July 11-15 in my hometown, Cincinnati, Ohio. This is the truly greatest meeting ...
Send a tribute, message or honor someone who has made a difference in your life. Highlight those living with Fragile X or those whom serve the Fragile X community.
PRESS RELEASE FROM ZYNERBA PHARMACEUTICALS Devon, PA, , April 23, 2018 — Zynerba Pharmaceuticals, Inc. (NASDAQ:ZYNE), a clinical-stage specialty neuropsychiatric pharmaceutical company dedicated to developing and commercializing innovative pharmaceutically-produced transdermal cannabinoid treatments for rare and near-rare neurological and ...
Registration for the 16th NFXF International Fragile X Conference is now live, register now to take advantage of the early-bird discount! The Conference is coming to Cincinnati, Ohio, this July 11-15, and we want you ...
At the 15th International Fragile X Conference’s Saturday night banquet, we debuted the Fragile X Dance Crew, starring our siblings and self-advocates! They performed a routine learned at the self-advocate dance sessions, set to Justin Timberlake’s song “Can’t Stop the Feeling!" Check out their performances!
The National Fragile X Foundation is pleased to announce the 2014 NFXF Conference Award winners. The following individuals are recognized for their outstanding service to the Fragile X community. Congratulations and thank you to the ...
The 15th International Fragile X Conference is coming too....
Summer may be a time of R&R in the rest of the world, but our devoted Fragile X fundraisers always seem to use the warm months to heat up their engines and put their creative ...