Sophia James, a top 10 finalist in the latest season of American Idol, talks about being a sibling of her brother James, who has Fragile X syndrome. You can view the video or read the transcript below. There is so much in what she says — take the time to watch/read it. It’s well worth your time.
The National Fragile X Foundation is thrilled to announce that Sophia James (formerly Wackerman) will be a keynote speaker on day one — May 29, 2020 — of our upcoming 17th NFXF International Fragile X Conference.
Emily Mack remembers her first time at an NFXF Int'l Fragile X Conference. “The best part was that it was the first time where I truly felt like everyone around me just understood, without explanation of who we were, what Fragile X was, and the highs and lows that it can bring to everyday.” Read her story.
Thanks to the generosity of local NFXF chapters, community partners, and private donors, conference scholarships have been made available to assist those who might not otherwise be able to attend this year’s conference. DEADLINE: March 25, 2020
Ten $1,000 scholarships for Junior Investigators whose area of focus is Fragile X to be awarded for both basic and clinical science research. DEADLINE: February 24, 2020.
The call for presentations for the 17th NFXF International Fragile X Conference opens January 29, 2020. Here is everything you need to know to submit your presentation. DEADLINE: February 24, 2020
NFXF Executive Director Linda Sorensen reflects on her experience at the 16th International Fragile X Conference held in Cincinnati 2018.
Send a tribute, message or honor someone who has made a difference in your life. Highlight those living with Fragile X or those whom serve the Fragile X community.
Zynerba Pharmaceuticals Announces Oral Presentation of ZYN002 Data at the 16th NFXF International Fragile X Conference in July 2018
PRESS RELEASE FROM ZYNERBA PHARMACEUTICALS Devon, PA, , April 23, 2018 — Zynerba Pharmaceuticals, Inc. (NASDAQ:ZYNE), a clinical-stage specialty neuropsychiatric pharmaceutical company dedicated to developing and commercializing innovative pharmaceutically-produced transdermal cannabinoid treatments for rare and near-rare neurological and »
Registration for the 16th NFXF International Fragile X Conference is now live, register now to take advantage of the early-bird discount! The Conference is coming to Cincinnati, Ohio, this July 11-15, and we want you »
At the 15th International Fragile X Conference’s Saturday night banquet, we debuted the Fragile X Dance Crew, starring our siblings and self-advocates! They performed a routine learned at the self-advocate dance sessions, set to Justin Timberlake’s song “Can’t Stop the Feeling!" Check out their performances!