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Several of our Fragile X LINKS Groups have short online surveys for local families to take so that they can stay up to date with your needs and interests. Your feedback is important [...]
The National Fragile X Foundation is looking people to share a first-person story from parents/family members point of view facing specific transition points. Submissions will be considered for inclusion into the Fragile X Quarterly and other future foundation communications.
By Jeffrey Cohen Director of Governmental Affairs and Advocacy, NFXF The 2012 federal budget remains an unsettled matter. The 2011 fiscal year ends on 9/30 and 2012 begins on 10/1. Under “normal” circumstances the 2012 [...]
Walk for Fragile X September 3, 2011 Milwaukee, WI Fragile X LINKS Group of Wisconsin On September 3, the Fragile X LINKS Group of Wisconsin gathered with friends and family for their first [...]
Robert Miller, Executive Director of the NFXF I don't need to tell you that Fragile X syndrome can have a big impact on families! But exactly what is that impact and what can [...]
From the New York State OPWDD press release (STATEN ISLAND) The New York State Office for People With Developmental Disabilities' (OPWDD) Institute for Basic Research in Developmental Disabilities (IBR) has been selected to receive a [...]
When their son Matthew was diagnosed with Fragile X at the age of 14 months Michele & Paul Kaplan's world crumbled. Thankfully, they were able to attend the International Fragile X Conference in Atlanta two [...]
My name is Lara Bailey and I have Fragile X. My carrier status is that I am a mosaic. I have both the full mutation and the pre-mutation. It was passed down from my mother's [...]
