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30 06, 2011

The Car Guy

By |2017-07-31T15:33:29-04:00Jun 30, 2011|Faces of Fragile X|Comments Off on The Car Guy

Spencer Shelton is a 20-year-old second-year student at Eastern New Mexico University in Roswell, NM, "the center of the alien universe," as Spencer puts it. Spencer's home is in Mesilla, NM, a 3-hour drive from [...]

30 06, 2011

My Three Sons

By |2017-07-31T15:33:22-04:00Jun 30, 2011|Faces of Fragile X|Comments Off on My Three Sons

I have three sons my two older sons are affected by FXS , Kyle is 14- he just graduated from middle school and will be attending our local high school next year. He is also [...]

29 06, 2011

All About Jack

By |2017-07-31T15:33:17-04:00Jun 29, 2011|Faces of Fragile X|Comments Off on All About Jack

Jack was diagnosed with FXS a little over ten years ago when he was just shy of his second birthday. The first signal that something was up was his lack of talking. He still can't [...]

29 06, 2011

Mother and Daughter new diagnosed

By |2017-07-31T15:33:15-04:00Jun 29, 2011|Faces of Fragile X|Comments Off on Mother and Daughter new diagnosed

My daughter who is now 2 and a half started showing signs of being a bit different and an early age. At 8 months I decided to start looking into things myself. Doing research and [...]

28 06, 2011

There is nothing we can't do!

By |2011-06-28T20:36:48-04:00Jun 28, 2011|Faces of Fragile X|Comments Off on There is nothing we can't do!

My greatest reward from my journey with 2 boys ( Matthew is 14 and Benjamin is 8 ) with Fragile X is that my mantra has become "There's nothing we can't do!" Since Matthew's diagnosis [...]

28 06, 2011

There is nothing we can’t do!

By |2017-07-31T15:33:12-04:00Jun 28, 2011|Faces of Fragile X|Comments Off on There is nothing we can’t do!

My greatest reward from my journey with 2 boys ( Matthew is 14 and Benjamin is 8 ) with Fragile X is that my mantra has become "There's nothing we can't do!" Since Matthew's diagnosis [...]

28 06, 2011

Never Give Up

By |2017-07-31T15:33:12-04:00Jun 28, 2011|Faces of Fragile X|Comments Off on Never Give Up

In the spring of 2003, Parker (then 3 1/2) & Allison (7 mo) were diagnosed with Fragile X. In many ways, the diagnoses greatly changed who we are. We went from a family who had [...]

28 06, 2011

Cape Cod Vacations and College Plans

By |2017-07-31T15:33:10-04:00Jun 28, 2011|Faces of Fragile X|Comments Off on Cape Cod Vacations and College Plans

Patrick, 19 non verbal, affected, full mutation with sister, Kelley, 17, full mutation at the beach last summer. This picture involves one of Patrick's favorite things to do with his family. We go to Cape [...]

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