Faces of Fragile X

/Faces of Fragile X

Face of Fragile X: Logan

What would you like others to know about him? Logan is 10 years old and was diagnosed at 15 months old. It hasn’t been an easy road but with help from family, friends, and his teachers he has progressed and learned so much.

By | 2019-07-12T12:02:06+00:00 Jul 12, 2019|Faces of Fragile X|Comments Off on Face of Fragile X: Logan

Faces of Fragile X: Avery

Avery is beautiful. She has the best curly hair around. She loves animals, routines, her neighbor friends, her cousins, and putting on makeup with her auntie. She is so smiley and always excited to see her cousin Elliott.

By | 2019-07-05T13:26:40+00:00 Jul 5, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Avery

Faces of Fragile X: Nicholas

What would you like others to know about him? He is helpful and very patient when we drag him all over the place. What is your favorite thing about him? His smile is amazing and he is so fun to hang out with. If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be? People with Fragile X have a very genuine heart. School can be a challenge but if you stay involved you can make it through. Once you get through the school years it is easier for them to be themselves.

By | 2019-07-03T13:19:47+00:00 Jul 3, 2019|Blog, Faces of Fragile X|Comments Off on Faces of Fragile X: Nicholas

The Friendship of Julian and Jonah

My son has Fragile X Syndrome and I often felt sad that friendship -- which I value enormously -- was something Julian didn’t even notice. He didn’t miss it; I missed it for him. After all, wishing for friends for your kid is pretty universal. Inclusive schools and communities are great on a societal level, but maybe not enough on a personal level.

By | 2019-04-23T09:55:57+00:00 Apr 15, 2019|Faces of Fragile X|Comments Off on The Friendship of Julian and Jonah

Alex

My son Alex was diagnosed with Fragile X syndrome at the age of 2 and half years of age and i was scared to death and new nothing about it. I later found out that [...]

By | 2017-07-31T15:34:57+00:00 Aug 20, 2011|Faces of Fragile X|Comments Off on Alex

Mrs.

My two babies are now 12 year old Margaux and 9 1/2 year old Garrick and what a wicked ride! We get to spend 6 weeks each summer driving from Florida to Massachusetts and Maine [...]

By | 2017-07-31T15:34:56+00:00 Aug 10, 2011|Faces of Fragile X|Comments Off on Mrs.

My Extra Special Day

I have had the joy of watching you grow into an amazing young woman. Thank you for being my extra special daughter and sister to your brother. We are proud of you and all that [...]

By | 2017-07-31T15:34:54+00:00 Jul 31, 2011|Faces of Fragile X|Comments Off on My Extra Special Day
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