What would you like others to know about him? I want people to know that Cody is my reason. My reason why I do the things I do for the Fragile X Community. My [...]
Ian has Fragile X syndrome. Meet Ian and see what his mom says about him, what she wants her community to know about Fragile X, and her advice for new parents.
John Menke has FXTAS. Read what his daughter, Kelly, has to say about him, FXTAS, research, advice to new parents, and more.
Jack is a very happy 7-year-old boy. He is healthy, loves to swim, loves animals, and, while is he delayed, he continues to gain skill and learn new things every day.
What would you like others to know about him? Logan is 10 years old and was diagnosed at 15 months old. It hasn’t been an easy road but with help from family, friends, and his teachers he has progressed and learned so much.
Meet our friend David. David likes the show Law and Order because they fight the bad guys. He had a lot of fun at last year’s Conference.
What would you like others to know about him? Pat is funny and likes to laugh. He does not speak but is funny in his own way. As an example, if you ask, "How [...]
Avery is beautiful. She has the best curly hair around. She loves animals, routines, her neighbor friends, her cousins, and putting on makeup with her auntie. She is so smiley and always excited to see her cousin Elliott.
What would you like others to know about him? He is helpful and very patient when we drag him all over the place. What is your favorite thing about him? His smile is amazing and he is so fun to hang out with. If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be? People with Fragile X have a very genuine heart. School can be a challenge but if you stay involved you can make it through. Once you get through the school years it is easier for them to be themselves.
My son has Fragile X Syndrome and I often felt sad that friendship -- which I value enormously -- was something Julian didn’t even notice. He didn’t miss it; I missed it for him. After all, wishing for friends for your kid is pretty universal. Inclusive schools and communities are great on a societal level, but maybe not enough on a personal level.
My son Alex was diagnosed with Fragile X syndrome at the age of 2 and half years of age and i was scared to death and new nothing about it. I later found out that [...]
My two babies are now 12 year old Margaux and 9 1/2 year old Garrick and what a wicked ride! We get to spend 6 weeks each summer driving from Florida to Massachusetts and Maine [...]
Jermaime is now 23 he has a job and love to socialize. He has many friends, love talking on the phone and going out. He is the the oldest of four sons. He is loved [...]
Jermine and jamie grow up to be such a wonderful young men 23 and 18 both love church and love to socialize every where we they both know someone. They are both loved by two [...]
I have had the joy of watching you grow into an amazing young woman. Thank you for being my extra special daughter and sister to your brother. We are proud of you and all that [...]