Faces of Fragile X

Fragile X syndrome is an inherited intellectual and developmental disability, and each individual is — well, individual. They are Xtraordinary in their own way.

Below are just a sampling of individuals with Fragile X — a gallery we call Faces of Fragile X. Click on each photo to learn more about them. And, remember, one day you may meet someone with Fragile X syndrome, or you may already know someone. They may be shy, anxious, have difficulty making eye contact, and have short attention spans, but they want to be social. They want to be your friend. Be friendly, patient, and talk to them. They will warm your heart.

Learn more about Fragile X syndrome and support Fragile X awareness, education, and research with a donation.

Faces of Fragile X: Eric

By |2020-01-06T19:18:10-05:00Dec 23, 2019|Faces of Fragile X|

Eric has Fragile X syndrome, and his mom shares about what Eric is like. "To know Eric is to love him! I love Eric’s compassionate heart and sense of humor. He keeps us laughing." Read more.

Faces of Fragile X: Ross and Brooks

By |2019-11-20T17:24:29-05:00Nov 20, 2019|Faces of Fragile X|

Brooks and Ross are two cool guys-------they are polar opposites, though. Brooks loves his music (loud) and Ross does not like music. Brooks is tough and rugged and Ross is more fragile. Brooks loves being around people and Ross is a loner.

Faces of Fragile X: Bryan

By |2020-07-16T16:43:32-04:00Nov 15, 2019|Faces of Fragile X|

Meet Bryan. He has Fragile X syndrome. His sister says, he has interests and needs similar to everyone else. We like to tease each other, go to sporting events, and go swimming.

Faces of Fragile X: Aaron

By |2019-09-13T16:52:02-04:00Sep 13, 2019|Faces of Fragile X|

I tell people Aaron is not just my son, he's my universe! He is 40 years old. He was one of the first to be diagnosed. He has had many therapies that have ultimately helped him. He is funny and bright in so many ways.

Faces of Fragile X: Brian

By |2019-08-13T16:13:12-04:00Aug 13, 2019|Faces of Fragile X|

Brian loves to be outside. He loves sports. He is on two baseball teams and a basketball team. He loves to bowl. He loves spending time with his friends. He is always helping and looking out for his friends and family. He struggles with managing his behaviors. Sometimes it is all people notice, which is sad because he is so much more.

Faces of Fragile X: Avi

By |2019-08-02T10:38:46-04:00Aug 2, 2019|Faces of Fragile X|

Meet Avi. He has Fragile X syndrome, and his mom tells us what she loves about him, what she wants others to know, her advice for newly diagnosed families, and more. It is a peek into just one Fragile X family - but worth your time.

Faces of Fragile X: Paul

By |2019-07-29T11:20:44-04:00Jul 29, 2019|Faces of Fragile X|

Paul is one of our Faces of Fragile X. His story is all too common for those with Fragile X - his mom tells us of their initial visit with a psychiatrist when Paul was 3, "After only twenty minutes with the doctor, he told us that Paul would never be able to do much, and that we should think about putting him in a facility or home. He could not have been more WRONG!!!!"

Faces of Fragile X: Varun

By |2019-07-25T11:32:40-04:00Jul 25, 2019|Faces of Fragile X|

Varun is a shy, confident witty teen whose smile just melts everyone’s heart. He is fond of baking, dancing, art, and wants everyone to be always happy. Read more about Varun, Fragile X, and advice for newly diagnosed families from his parents.

Faces of Fragile X: Colin

By |2019-07-23T11:37:06-04:00Jul 23, 2019|Faces of Fragile X|

Meet Colin. He has Fragile X syndrome. He knows everyone and has earned the nickname 'The Mayor.' His mom wants newly diagnosed parents to know, don’t ever give up. It’s ok and it’s not your fault. Advocate, educate and persevere.

Load More Posts