Faces of Fragile X

/Faces of Fragile X

Faces of Fragile X

We asked parents, caregivers, and others to answer a few questions about their loved ones with Fragile X.These are the Faces of Fragile X.  If you would like to learn more about Fragile X, start here.

Faces of Fragile X: Eric

Eric has Fragile X syndrome, and his mom shares about what Eric is like. "To know Eric is to love him! I love Eric’s compassionate heart and sense of humor. He keeps us laughing." Read more.

By | 2020-01-06T19:18:10+00:00 Dec 23, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Eric

Faces of Fragile X: Ross and Brooks

Brooks and Ross are two cool guys-------they are polar opposites, though. Brooks loves his music (loud) and Ross does not like music. Brooks is tough and rugged and Ross is more fragile. Brooks loves being around people and Ross is a loner.

By | 2019-11-20T17:24:29+00:00 Nov 20, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Ross and Brooks

Faces of Fragile X: Bryan

Meet Bryan. He has Fragile X syndrome. His sister says, he has interests and needs similar to everyone else. We like to tease each other, go to sporting events, and go swimming.

By | 2019-12-25T23:36:47+00:00 Nov 15, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Bryan

Faces of Fragile X: Aaron

I tell people Aaron is not just my son, he's my universe! He is 40 years old. He was one of the first to be diagnosed. He has had many therapies that have ultimately helped him. He is funny and bright in so many ways.

By | 2019-09-13T16:52:02+00:00 Sep 13, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Aaron

Faces of Fragile X: Brian

Brian loves to be outside. He loves sports. He is on two baseball teams and a basketball team. He loves to bowl. He loves spending time with his friends. He is always helping and looking out for his friends and family. He struggles with managing his behaviors. Sometimes it is all people notice, which is sad because he is so much more.

By | 2019-08-13T16:13:12+00:00 Aug 13, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Brian

Faces of Fragile X: Avi

Meet Avi. He has Fragile X syndrome, and his mom tells us what she loves about him, what she wants others to know, her advice for newly diagnosed families, and more. It is a peek into just one Fragile X family - but worth your time.

By | 2019-08-02T10:38:46+00:00 Aug 2, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Avi

Faces of Fragile X: Paul

Paul is one of our Faces of Fragile X. His story is all too common for those with Fragile X - his mom tells us of their initial visit with a psychiatrist when Paul was 3, "After only twenty minutes with the doctor, he told us that Paul would never be able to do much, and that we should think about putting him in a facility or home. He could not have been more WRONG!!!!"

By | 2019-07-29T11:20:44+00:00 Jul 29, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Paul

Faces of Fragile X: Varun

Varun is a shy, confident witty teen whose smile just melts everyone’s heart. He is fond of baking, dancing, art, and wants everyone to be always happy. Read more about Varun, Fragile X, and advice for newly diagnosed families from his parents.

By | 2019-07-25T11:32:40+00:00 Jul 25, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Varun

Faces of Fragile X: Colin

Meet Colin. He has Fragile X syndrome. He knows everyone and has earned the nickname 'The Mayor.' His mom wants newly diagnosed parents to know, don’t ever give up. It’s ok and it’s not your fault. Advocate, educate and persevere.

By | 2019-07-23T11:37:06+00:00 Jul 23, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Colin
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