Faces of Fragile X

/Faces of Fragile X

Faces of Fragile X: Aaron

I tell people Aaron is not just my son, he's my universe! He is 40 years old. He was one of the first to be diagnosed. He has had many therapies that have ultimately helped him. He is funny and bright in so many ways.

By | 2019-09-13T16:52:02+00:00 Sep 13, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Aaron

Faces of Fragile X: Brian

Brian loves to be outside. He loves sports. He is on two baseball teams and a basketball team. He loves to bowl. He loves spending time with his friends. He is always helping and looking out for his friends and family. He struggles with managing his behaviors. Sometimes it is all people notice, which is sad because he is so much more.

By | 2019-08-13T16:13:12+00:00 Aug 13, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Brian

Faces of Fragile X: Avi

Meet Avi. He has Fragile X syndrome, and his mom tells us what she loves about him, what she wants others to know, her advice for newly diagnosed families, and more. It is a peek into just one Fragile X family - but worth your time.

By | 2019-08-02T10:38:46+00:00 Aug 2, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Avi

Faces of Fragile X: Paul

Paul is one of our Faces of Fragile X. His story is all too common for those with Fragile X - his mom tells us of their initial visit with a psychiatrist when Paul was 3, "After only twenty minutes with the doctor, he told us that Paul would never be able to do much, and that we should think about putting him in a facility or home. He could not have been more WRONG!!!!"

By | 2019-07-29T11:20:44+00:00 Jul 29, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Paul

Faces of Fragile X: Varun

Varun is a shy, confident witty teen whose smile just melts everyone’s heart. He is fond of baking, dancing, art, and wants everyone to be always happy. Read more about Varun, Fragile X, and advice for newly diagnosed families from his parents.

By | 2019-07-25T11:32:40+00:00 Jul 25, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Varun

Faces of Fragile X: Colin

Meet Colin. He has Fragile X syndrome. He knows everyone and has earned the nickname 'The Mayor.' His mom wants newly diagnosed parents to know, don’t ever give up. It’s ok and it’s not your fault. Advocate, educate and persevere.

By | 2019-07-23T11:37:06+00:00 Jul 23, 2019|Faces of Fragile X|Comments Off on Faces of Fragile X: Colin

Face of Fragile X: Logan

What would you like others to know about him? Logan is 10 years old and was diagnosed at 15 months old. It hasn’t been an easy road but with help from family, friends, and his teachers he has progressed and learned so much.

By | 2019-07-12T12:02:06+00:00 Jul 12, 2019|Faces of Fragile X|Comments Off on Face of Fragile X: Logan
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