What would you like others to know about him?spencer - young boy with jars of candy

Spencer is the definition of joy. He loves to smile, read, swim, and play baseball.

What is your favorite thing about him?

Spencer’s attitude. He is always happy!

If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be?

The most commonly asked question is ‘What is Fragile X?’ After providing a canned simplified definition, I stress how precious our child is to us.

What is your advice for newly diagnosed families?

1. Choose joy. Always. 2. Seek out help (therapy, specialist, etc.) as quickly as possible.

What do you want your community to know about Fragile X?

Fragile X doesn’t define my child, but it is a part of him. Spencer’s teacher calls him ‘specially gifted’ and he is just that. Spencer has something to offer this world. He has a purpose.

About Faces of Fragile X

We asked parents, caregivers, and others to answer a few questions about their loved ones with Fragile X. These are the Faces of Fragile X, and This is Fragile X. If you would like to learn more about Fragile X, start here.

Get our free e-book, Fragile X 101, below.Fragile X 101 book cover