What would you like others to know about him?
He loves to be outside. He loves sports. He is on two baseball teams and a basketball team. He lovess to bowl. He loves spending time with his friends. He is always helping and looking out for his friends and family. He struggles with managing his behaviors. Sometimes it is all people notice, which is sad because he is so much more.
What is your favorite thing about him?
I love his caring and helpful nature. His smile can make you melt. When he laughs it is infectious.
If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be?
To give them a chance because they will amaze you.
What is your advice for newly diagnosed families?
Hang in there. There is a lot of help out there – seek it out. It can be a roller coaster at times but so worth it.
What do you want your community to know about Fragile X?
Give these kids/people a chance. They are able to achieve most challenges out in front of them.
Brian’s mom reached out to the group home where he lives to let them know about Nationl Fragile X Awareness Day. She hosted an ice cream social and offered to donate to the NFXF for each staff member who wore green on July 22 to raise awareness of Fragile X. The staff and all 11 residents joined in!
About Faces of Fragile X
We asked parents, caregivers, and others to answer a few questions about their loved ones with Fragile X. These are the Faces of Fragile X, and This is Fragile X. If you would like to learn more about Fragile X, start here.