Mitchell loves to dance.
What is your favorite thing about him?
His loving character.
If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be?
That it’s not a detriment, it becomes a wonderful experience for both yourself (caretaker) and the person with Fragile X. They teach you something about yourself you wouldn’t otherwise find out without going through the challenges and commitments to better their lives.
What is your advice for newly diagnosed families?
Don’t be alarmed. With patience, love, and understanding you can have a beautiful relationship with your child.
What do you want your community to know about Fragile X?
Caring for individuals with special needs determines societies base of benevolence.
What advice do you have for parents/caregivers who are considering participating in research studies and/or clinical trials?
It’s for the greater good.
About Faces of Fragile X
We asked parents, caregivers, and others to answer a few questions about their loved ones with Fragile X. These are the Faces of Fragile X, and This is Fragile X. If you would like to learn more about Fragile X, start here.