From the New York State OPWDD press release

(STATEN ISLAND) The New York State Office for People With Developmental Disabilities’ (OPWDD) Institute for Basic Research in Developmental Disabilities (IBR) has been selected to receive a $2.2 million, four-year cooperative agreement grant from the National Center on Birth Defects and Developmental Disabilities (NCBDDD) of the Centers for Disease Control and Prevention (CDC) for research on Fragile X syndrome, Commissioner Courtney Burke announced today.

… and a few quotes from the press release

Commissioner Burke said, “This collaborative grant will provide the resources necessary to improve the care, health, and lives of individuals with Fragile X syndrome, with potential benefits to other groups affected by intellectual disabilities.”

NFXF Executive Director Robby Miller said, “The NFXF is committed to seeing that all individuals in the US who are diagnosed with Fragile X syndrome receive care that is based on the best available data. This grant will ensure that is the case, and we are honored to work with IBR, the CDC, and the Data Coordinating Center.”

Dr. [W. Ted] Brown said, “I am very pleased to receive this grant on behalf of the FXCRC and in support of the many families affected by Fragile X syndrome. In collaboration with the NFXF and the CDC, we will now be able to develop a data collection and analysis approach that will lead to a greater understanding of this syndrome, co-occurring conditions and associated risk factors, and conventional treatments. This approach could provide valuable information for targeted interventions.”

« Read the full press release »