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25 10, 2022

Observable Symptoms of Anxiety in Individuals with Fragile X Syndrome: Parent and Caregiver Perspectives

By |2022-12-01T09:58:08-05:00Oct 25, 2022|Blog, Research, Research Results|Comments Off on Observable Symptoms of Anxiety in Individuals with Fragile X Syndrome: Parent and Caregiver Perspectives

Most individuals with FXS cannot state themselves that they are anxious and self-report is needed in current standardized assessments. The information analyzed in this study will result in the development of a measure where observable and quantifiable data on anxiety in those with FXS can become an outcome measure to be used in future research/trials.

21 09, 2022

Observable Symptoms of Anxiety in Individuals with Fragile X Syndrome: Parent and Caregiver Perspectives

By |2022-12-01T09:59:14-05:00Sep 21, 2022|Comments Off on Observable Symptoms of Anxiety in Individuals with Fragile X Syndrome: Parent and Caregiver Perspectives

Observable Symptoms of Anxiety in Individuals with Fragile X Syndrome: Parent and Caregiver Perspectives By Reymundo Lozano, Talia Thompson, Jayne Dixon-Weber, Craig A. Erickson, Elizabeth Berry-Kravis, Sara Williams, Elizabeth Smith, Jean A. Frazier, Hilary [...]

16 02, 2018

Help Guide Fragile X Research at NIH

By |2018-02-16T17:40:50-05:00Feb 16, 2018|Advocacy, Research|Comments Off on Help Guide Fragile X Research at NIH

Last year, the National Institutes of Health (NIH) funded $46 million in Fragile X research, an amount that has trended upwards in the past few years. Over the years, they have funded hundreds of millions [...]

9 04, 2013

A New World of Fragile X Resources

By |2013-04-09T21:51:56-04:00Apr 9, 2013|Annoucements, Fragile Xtras|Comments Off on A New World of Fragile X Resources

The communications world is moving faster than ever now that you can access information right at your fingertips, whether by smartphone, tablet, or computer on your lap or your desk. That’s why the National Fragile [...]

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