Premutation Disorders & Conditions — Webinar
Dr. Randi Hagerman joins us to discuss the latest information and research on premutation carriers. The recording includes the Q&A session following her presentation.
9
11, 2021
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6
05, 2021
COVID-19 Check-In: Month 15 — Ready for Re-Entry?
Jayne offers advice to Fragile X families in transitioning back after post-COVID-lockdowns, from school, to housing, to work, and more.
28
04, 2021
The Genetics of Fragile X Disorders
Many thanks to Brenda Finucane for this webinar to help each of us understand the genetics of Fragile X.
27
06, 2020
Reproductive and Gynecologic Care for Women with the Fragile X Premutation — Webinar
Care for women with FXPOI who struggle with infertility and the health effects of early onset ovarian insufficiency, including hot flushes, night sweats, and risks of osteoporosis.
16
02, 2018
Help Guide Fragile X Research at NIH
Last year, the National Institutes of Health (NIH) funded $46 million in Fragile X research, an amount that has trended upwards in the past few years. Over the years, they have funded hundreds of millions [...]
15
12, 2016
NFXF Webinar: Being Prepared for Adulthood
Dr. Yankowitz discusses the adult transitions you want to start planning well before your child ages out of services.
9
04, 2013
A New World of Fragile X Resources
The communications world is moving faster than ever now that you can access information right at your fingertips, whether by smartphone, tablet, or computer on your lap or your desk. That’s why the National Fragile [...]