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10 04, 2020

Now, More Than Ever… Together, We’re Stronger

By |2020-08-07T18:16:50-04:00Apr 10, 2020|Comments Off on Now, More Than Ever… Together, We’re Stronger

Now, More Than Ever... Together, We’re Stronger These resources and strategies are for parents and caregivers of children with  Fragile X syndrome. The most common behavioral challenges seen in FXS include behaviors associated with »

2 07, 2020

Xtraordinary Individuals

By |2020-09-17T13:56:56-04:00Jul 2, 2020|Comments Off on Xtraordinary Individuals

Xtraordinary Individuals We asked the Fragile X community to tell us about someone Xtraordinary in their lives. We heard from parents, professionals, friends, co-workers, grandparents, employers, cousins, doctors, and mentors, who told us about »

13 03, 2020

COVID-19: My child is home from school or work or a day program! What do I do?

By |2020-08-06T15:49:18-04:00Mar 13, 2020|Blog, Treatment & Strategies|Comments Off on COVID-19: My child is home from school or work or a day program! What do I do?

Timely advice from Jayne Dixon Weber for parents and families asking: What am I going to do with the children all day? How do I get supplies in the house? What if someone gets sick? What if I get sick? What about my work? What if things fall apart at home? 

1 06, 2017


By |2020-04-14T14:37:11-04:00Jun 1, 2017|Comments Off on Resources

Many Fragile X Clinics are opening across the United States and around the world. Clinics can guide parents to medication options that may address the symptoms of FXS, while new medications are coming on »

24 06, 2017

Reasons to Visit a Clinic

By |2020-04-06T17:07:22-04:00Jun 24, 2017|Comments Off on Reasons to Visit a Clinic

Why You Should Visit a Clinic By Jayne Dixon Weber While every Fragile X clinic is set up a little differently, they all offer similar services. They are staffed by people who understand Fragile X. »

23 05, 2017


By |2020-09-18T09:53:32-04:00May 23, 2017|Comments Off on Webinars

We offer free webinars to address some of the most frequently asked questions about Fragile X. Experts offer tips and other information you need to know. Family members, caregivers, and professionals are »

24 09, 2018

Newly Diagnosed

By |2020-09-02T10:37:08-04:00Sep 24, 2018|Comments Off on Newly Diagnosed

Newly Diagnosed For many families, when getting a diagnosis of Fragile X syndrome (FXS), Fragile X associated primary ovarian insufficiency (FXPOI), or Fragile X associated tremor ataxia syndrome (FXTAS), this is the first time »

6 07, 2017


By |2020-09-08T11:03:26-04:00Jul 6, 2017|Comments Off on Blog

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