2022 Medications Update — Webinar
Jayne Dixon Weber and Dr. Craig Erickson discuss new medications and review existing medications used for various issues related to Fragile X syndrome.
13
03, 2022
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9
02, 2021
Advocacy Day Social Story
Our own Jayne Dixon Weber pulled together a social story to use to help you and your self-advocate prepare for the NFXF Advocacy Day on February 24, 2021.
29
07, 2020
Getting Comfortable Wearing a Mask
Real-life tips from a mom, Jayne Dixon Weber, who’s already going through this with her own son, plus a a quick video from Rebecca Shaffer to guide you through the process of getting your child comfortable wearing a mask.
22
07, 2020
Adult Issues Panel Discussion — Webinar
Our panel discussion from the 2020 conference on adult issues in Fragile X syndrome. Presented by Elizabeth Berry-Kravis, Marcia Braden, Jayne Dixon Weber, Craig Erickson, and Randi Hagerman.
13
03, 2020
COVID-19: My child is home from school or work or a day program! What do I do?
Timely advice from Jayne Dixon Weber for parents and families asking: What am I going to do with the children all day? How do I get supplies in the house? What if someone gets sick? What if I get sick? What about my work? What if things fall apart at home?
31
10, 2011
Self-Regulation Through the Life Span
Join the National Fragile X Foundation’s Executive Direct, Robert Miller and Coordinator of Support Services, Jayne Dixon Weber as they interview LINKS Group Leader and Fragile X parent Laureen Majeske and Developmental FX’s Tracy Stackhouse and Sarah “Mouse” Scharfenaker for a discussion on how self-regulation makes things work for Fragile X.
14
03, 2023
School, Education and Fragile X Syndrome
School, Education and Fragile X Syndrome Children and adults with Fragile X syndrome can benefit from education and schooling. With appropriate support and accommodations, they can develop their cognitive and social skills and make [...]
19
12, 2022
Home for the Holidays: Making the Visit Comfortable
A reader asks (and we answer): I heard it can be challenging for individuals with Fragile X to meet new people and be in new situations. Do you have any tips on making the children feel comfortable?
9
11, 2022
Webinar: Medication For Individuals With Fragile X Syndrome
Dr. Craig Erickson, Medical Director at the Fragile X Clinic at Cincinnati Children's Hospital Medical Center, joins us for our 10th annual webinar focused on Medication for Individuals with Fragile X Syndrome.
8
11, 2022
Webinar: Medication Update For Individuals With Fragile X Syndrome
Watch Medication Update For Individuals With Fragile X Syndrome With Dr. Craig Erickson and Moderated by Jayne Dixon Weber Thank you for your interest in our [...]