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13 03, 2022

2022 Medications Update — Webinar

By |2023-03-13T13:40:00-04:00Mar 13, 2022|Webinar|Comments Off on 2022 Medications Update — Webinar

Jayne Dixon Weber and Dr. Craig Erickson discuss new medications and review existing medications used for various issues related to Fragile X syndrome.

9 02, 2021

Advocacy Day Social Story

By |2021-02-09T16:22:39-05:00Feb 9, 2021|Advocacy|Comments Off on Advocacy Day Social Story

Our own Jayne Dixon Weber pulled together a social story to use to help you and your self-advocate prepare for the NFXF Advocacy Day on February 24, 2021.

29 07, 2020

Getting Comfortable Wearing a Mask

By |2020-08-07T17:21:35-04:00Jul 29, 2020|Treatment & Strategies|Comments Off on Getting Comfortable Wearing a Mask

Real-life tips from a mom, Jayne Dixon Weber, who’s already going through this with her own son, plus a a quick video from Rebecca Shaffer to guide you through the process of getting your child comfortable wearing a mask.

22 07, 2020

Adult Issues Panel Discussion — Webinar

By |2023-03-10T15:10:51-05:00Jul 22, 2020|Webinar|Comments Off on Adult Issues Panel Discussion — Webinar

Our panel discussion from the 2020 conference on adult issues in Fragile X syndrome. Presented by Elizabeth Berry-Kravis, Marcia Braden, Jayne Dixon Weber, Craig Erickson, and Randi Hagerman.

13 03, 2020

COVID-19: My child is home from school or work or a day program! What do I do?

By |2020-08-06T15:49:18-04:00Mar 13, 2020|Blog, Treatment & Strategies|Comments Off on COVID-19: My child is home from school or work or a day program! What do I do?

Timely advice from Jayne Dixon Weber for parents and families asking: What am I going to do with the children all day? How do I get supplies in the house? What if someone gets sick? What if I get sick? What about my work? What if things fall apart at home? 

31 10, 2011

Self-Regulation Through the Life Span

By |2011-10-31T14:30:46-04:00Oct 31, 2011|Fragile Xtras, Podcast|Comments Off on Self-Regulation Through the Life Span

Join the National Fragile X Foundation’s Executive Direct, Robert Miller and Coordinator of Support Services, Jayne Dixon Weber as they interview LINKS Group Leader and Fragile X parent Laureen Majeske and Developmental FX’s Tracy Stackhouse and Sarah “Mouse” Scharfenaker for a discussion on how self-regulation makes things work for Fragile X.

14 03, 2023

School, Education and Fragile X Syndrome

By |2023-03-14T11:05:46-04:00Mar 14, 2023|Comments Off on School, Education and Fragile X Syndrome

School, Education and Fragile X Syndrome Children and adults with Fragile X syndrome can benefit from education and schooling. With appropriate support and accommodations, they can develop their cognitive and social skills and make [...]

9 11, 2022

Webinar: Medication For Individuals With Fragile X Syndrome

By |2023-01-18T15:50:01-05:00Nov 9, 2022|Blog|Comments Off on Webinar: Medication For Individuals With Fragile X Syndrome

Dr. Craig Erickson, Medical Director at the Fragile X Clinic at Cincinnati Children's Hospital Medical Center, joins us for our 10th annual webinar focused on Medication for Individuals with Fragile X Syndrome.

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