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Now, More Than Ever... Together, We’re Stronger These resources and strategies are for parents and caregivers of children with Fragile X syndrome. The most common behavioral challenges seen in FXS include behaviors associated with »
Xtraordinary Individuals We asked the Fragile X community to tell us about someone Xtraordinary in their lives. We heard from parents, professionals, friends, co-workers, grandparents, employers, cousins, doctors, and mentors, who told us about »
Real-life tips from a mom, Jayne Dixon Weber, who’s already going through this with her own son, plus a a quick video from Rebecca Shaffer to guide you through the process of getting your child comfortable wearing a mask.
What can we do to take care of ourselves and to help others? A mother takes a step back to imagine what life during a pandemic looks like through the eyes of her son, who has Fragile X syndrome.
Timely advice from Jayne Dixon Weber for parents and families asking: What am I going to do with the children all day? How do I get supplies in the house? What if someone gets sick? What if I get sick? What about my work? What if things fall apart at home?
Why You Should Visit a Clinic By Jayne Dixon Weber While every Fragile X clinic is set up a little differently, they all offer similar services. They are staffed by people who understand Fragile X. »
Newly Diagnosed For many families, when getting a diagnosis of Fragile X syndrome (FXS), Fragile X associated primary ovarian insufficiency (FXPOI), or Fragile X associated tremor ataxia syndrome (FXTAS), this is the first time »
The NFXF Blog
