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13 03, 2022

2022 Medications Update — Webinar

By |2024-02-02T17:39:52-05:00Mar 13, 2022|Webinar|Comments Off on 2022 Medications Update — Webinar

Jayne Dixon Weber and Dr. Craig Erickson discuss new medications and review existing medications used for various issues related to Fragile X syndrome.

9 02, 2021

Advocacy Day Social Story

By |2021-02-09T16:22:39-05:00Feb 9, 2021|Advocacy|Comments Off on Advocacy Day Social Story

Our own Jayne Dixon Weber pulled together a social story to use to help you and your self-advocate prepare for the NFXF Advocacy Day on February 24, 2021.

29 07, 2020

Getting Comfortable Wearing a Mask

By |2020-08-07T17:21:35-04:00Jul 29, 2020|Treatment & Strategies|Comments Off on Getting Comfortable Wearing a Mask

Real-life tips from a mom, Jayne Dixon Weber, who’s already going through this with her own son, plus a a quick video from Rebecca Shaffer to guide you through the process of getting your child comfortable wearing a mask.

13 03, 2020

COVID-19: My child is home from school or work or a day program! What do I do?

By |2020-08-06T15:49:18-04:00Mar 13, 2020|Blog, Treatment & Strategies|Comments Off on COVID-19: My child is home from school or work or a day program! What do I do?

Timely advice from Jayne Dixon Weber for parents and families asking: What am I going to do with the children all day? How do I get supplies in the house? What if someone gets sick? What if I get sick? What about my work? What if things fall apart at home? 

31 10, 2011

Self-Regulation Through the Life Span

By |2011-10-31T14:30:46-04:00Oct 31, 2011|Fragile Xtras, Podcast|Comments Off on Self-Regulation Through the Life Span

Join the National Fragile X Foundation’s Executive Direct, Robert Miller and Coordinator of Support Services, Jayne Dixon Weber as they interview LINKS Group Leader and Fragile X parent Laureen Majeske and Developmental FX’s Tracy Stackhouse and Sarah “Mouse” Scharfenaker for a discussion on how self-regulation makes things work for Fragile X.

27 06, 2023

Our Board

By |2024-02-16T06:55:44-05:00Jun 27, 2023|Comments Off on Our Board

Meet the NFXF board of directors. While we are here to serve all those living with Fragile X, we couldn’t do what we do without the support of the entire Fragile X community.

27 06, 2023

Our Advisors

By |2023-12-21T12:57:50-05:00Jun 27, 2023|Comments Off on Our Advisors

The NFXF Scientific & Clinical Advisory Committee The NFXF's Scientific and Clinical Advisory Committee (SCAC) is a group of clinical and research professionals who are thought leaders in the Fragile X field.  [...]

14 06, 2023

Physical & Medical Concerns

By |2023-09-14T09:01:09-04:00Jun 14, 2023|Comments Off on Physical & Medical Concerns

Physical & Medical Concerns From Our Info Series Treatment Recommendations Webinars More Resources Fragile X Clinics Fragile X clinics provide medical services (including medication evaluations and consultations) supervised [...]

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