Presented by Dr. Elizabeth Berry-Kravis
From our NFXF Webinar Series, Dr. Berry-Kravis joined us and shared a brief presentation about what we’ve learned about the problems that face adults living with Fragile X syndrome from the FORWARD data — the largest database of information on Fragile X syndrome in the United States — including what adults are doing in their community and their living situation.
Topics covered include long-term medication management, health concerns, as well as the importance of continuing to utilize previously learned skills, such as reading.
Related Materials: Presentation Slides
Presenter: Dr. Elizabeth Berry-Kravis
Moderator: Jayne Dixon-Weber