By Jayne Dixon Weber|2023-03-13T14:12:31-04:00May 28, 2015|Education|
Going to an IEP meeting was always an emotional experience for me. After a couple of years of meetings with a group of people—teachers, psychologists, administrators—who had obviously already made many decisions regarding my son ... I decided to make some changes.
By NFXF|2023-03-13T14:15:05-04:00Mar 24, 2015|School and Education, Treatment and Intervention|
An adaptive physical education class like this one set up in your school would be a wonderful program that every student could benefit from.
By NFXF|2013-10-23T13:01:08-04:00Oct 23, 2013|Fundraiser, Northeast Kansas|
“The walk just keeps getting bigger and better every year!” This was a comment made by the mom in one of our families who drives more than three hours to attend the Walk for Faces of Fragile X in Kansas. She was particularly excited this year because her brother and his family joined them at the walk. That’s what it’s all about: families and their communities coming together to raise awareness, foster acceptance and see that we are not alone on this sometimes daunting journey.
By NFXF admin|2020-07-30T14:15:24-04:00Aug 27, 2013|
The Value of a Detailed School Schedule By Jayne Dixon Weber During the COVID-19 response, school schedules may look at little different everywhere, but we want to provide ideas that you can use at [...]
By NFXF|2013-07-24T11:40:58-04:00Jul 24, 2013|Awareness Day|
Every day when you walk out the door with your child who has Fragile X syndrome (FXS), you are raising awareness of the condition. It happens in a variety of ways, and what is so [...]
By NFXF|2012-07-14T11:27:38-04:00Jul 14, 2012|2012, Podcast|
Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]
By NFXF|2012-07-14T11:26:44-04:00Jul 14, 2012|2012, Podcast|
Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]
By NFXF|2012-07-14T11:25:04-04:00Jul 14, 2012|2012|
Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]
By NFXF|2012-05-31T15:00:33-04:00May 31, 2012|2012, Fragile Xtras|
This year’s conference is ship-shape with some great keynote presenters lined up to start your full-sail days! Keynote Speakers Be buoyed up by on the latest research news presented by Elizabeth Berry-Kravis MD PhD, Kim [...]
By NFXF|2012-03-29T20:25:57-04:00Mar 29, 2012|2012, Fragile Xtras|
Curious about what's going to be at the conference? Here are a few highlights: Keynote presentations by Elizabeth Berry-Kravis MD PhD, Kim Huber PhD, , Stephen Warren PhD, and Rick Guidotti of Positive Exposure [...]