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28 05, 2015

Preparing for Your Child’s Individualized Education Program (IEP)

By |2023-03-13T14:12:31-04:00May 28, 2015|Education|Comments Off on Preparing for Your Child’s Individualized Education Program (IEP)

Going to an IEP meeting was always an emotional experience for me. After a couple of years of meetings with a group of people—teachers, psychologists, administrators—who had obviously already made many decisions regarding my son ... I decided to make some changes.

23 10, 2013

The 3rd Annual Walk for Faces of Fragile X

By |2013-10-23T13:01:08-04:00Oct 23, 2013|Fundraiser, Northeast Kansas|Comments Off on The 3rd Annual Walk for Faces of Fragile X

“The walk just keeps getting bigger and better every year!” This was a comment made by the mom in one of our families who drives more than three hours to attend the Walk for Faces of Fragile X in Kansas. She was particularly excited this year because her brother and his family joined them at the walk. That’s what it’s all about: families and their communities coming together to raise awareness, foster acceptance and see that we are not alone on this sometimes daunting journey.

27 08, 2013

The Value of a Detailed School Schedule

By |2020-07-30T14:15:24-04:00Aug 27, 2013|0 Comments

The Value of a Detailed School Schedule By Jayne Dixon Weber During the COVID-19 response, school schedules may look at little different everywhere, but we want to provide ideas that you can use at [...]

14 07, 2012

Preparing Yourself for the 13th International Fragile X Conference: Emotional Aspect and Making Friends

By |2012-07-14T11:27:38-04:00Jul 14, 2012|2012, Podcast|Comments Off on Preparing Yourself for the 13th International Fragile X Conference: Emotional Aspect and Making Friends

Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]

14 07, 2012

Preparing Yourself for the 13th International Fragile X Conference: What the Conference is Like and Activities

By |2012-07-14T11:26:44-04:00Jul 14, 2012|2012, Podcast|Comments Off on Preparing Yourself for the 13th International Fragile X Conference: What the Conference is Like and Activities

Join experienced parents and conference-goers -- Jayne Dixon Weber, Arlene Cohen, and Michele Kaplan -- on our newest podcasts as they give you the lowdown on how to prepare for the 13th International Fragile X [...]

31 05, 2012

Conference Reminders – Set Sail for Miami!

By |2012-05-31T15:00:33-04:00May 31, 2012|2012, Fragile Xtras|Comments Off on Conference Reminders – Set Sail for Miami!

This year’s conference is ship-shape with some great keynote presenters lined up to start your full-sail days! Keynote Speakers Be buoyed up by on the latest research news presented by Elizabeth Berry-Kravis MD PhD, Kim [...]

29 03, 2012

International Fragile X Conference Updates

By |2012-03-29T20:25:57-04:00Mar 29, 2012|2012, Fragile Xtras|Comments Off on International Fragile X Conference Updates

Curious about what's going to be at the conference? Here are a few highlights: Keynote presentations by Elizabeth Berry-Kravis MD PhD, Kim Huber PhD, , Stephen Warren PhD, and Rick Guidotti of Positive Exposure [...]

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