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3 08, 2017

School Transition Strategies

By |2022-08-03T17:49:16-04:00Aug 3, 2017|Comments Off on School Transition Strategies

School Transition Strategies By Jayne Dixon Weber A new school can be tough for any child, and especially so for children living with Fragile X syndrome. To address this often difficult milestone, our in-house [...]

1 06, 2017

Resources

By |2023-04-10T13:50:57-04:00Jun 1, 2017|Comments Off on Resources

Living With Fragile X Resources Fragile X Clinics & IDEA Many Fragile X Clinics are opening across the United States and around the world. Clinics can guide parents to medication options that may [...]

10 05, 2017

Visiting the Dentist

By |2023-06-14T16:19:05-04:00May 10, 2017|Behavior|Comments Off on Visiting the Dentist

I learned pretty quickly that visits to a dentist were going to be a challenge for my son, Ian. I demonstrated the process over and over again. I helped him brush his teeth, encouraged him to brush his own teeth, tried different toothbrushes and toothpaste. I needed Bonnie.

15 03, 2017

Living Settings for Adults with FXS

By |2023-03-12T22:15:11-04:00Mar 15, 2017|Adolescents and Adults, Adulthood, FXS|Comments Off on Living Settings for Adults with FXS

As your child grows into a young adult, you may consider independent or semi-independent living settings. There are a variety of living settings across the United States for people with developmental disabilities.

26 10, 2016

You Are Never Too Old to Wear a Pink Tutu . . . and Other Lessons Our Son Has Taught Our Family

By |2023-06-14T16:00:32-04:00Oct 26, 2016|Daily Living, Education|Comments Off on You Are Never Too Old to Wear a Pink Tutu . . . and Other Lessons Our Son Has Taught Our Family

Like many of you, I will always remember the day and time when I received the diagnosis of our son, Ian. Fragile X syndrome – never heard of it. These are the lessons my family has learned since that time.

3 02, 2016

Getting and Keeping a Job

By |2023-03-12T08:46:49-04:00Feb 3, 2016|Adulthood, Treatment and Intervention|Comments Off on Getting and Keeping a Job

It was late summer and Ian was 18 years old and he was getting ready to start the transition program at his high school, a program for students 18-21 years old after they graduate from high school. I had to figure out how to make this work.

11 06, 2015

Get to Know Your Local Firefighters

By |2023-06-14T16:14:22-04:00Jun 11, 2015|Daily Living, Education|Comments Off on Get to Know Your Local Firefighters

Getting to know your local firefighters can help you and your children with Fragile X syndrome in so many more ways than you think. Read about how to engage with them and how it will help your family.

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