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23 05, 2017

Webinars

By |2022-11-29T10:14:44-05:00May 23, 2017|Comments Off on Webinars

Webinars We offer free webinars to address some of the most frequently asked questions about Fragile X. Experts offer tips and other information you need to know. Family members, caregivers, and professionals are invited [...]

31 03, 2017

Adult Living Situations and Fragile X

By |2017-03-31T15:11:00-04:00Mar 31, 2017|Webinar|Comments Off on Adult Living Situations and Fragile X

As your child gets older, there are many decisions to be made. One of the biggest decisions is determining the best living situation for your young adult. Jayne Dixon Weber will be presenting some [...]

15 03, 2017

Living Settings for Adults with FXS

By |2022-11-01T10:23:08-04:00Mar 15, 2017|Adolescents and Adults, Adults With FXS, FXS|Comments Off on Living Settings for Adults with FXS

As your child grows into a young adult, you may consider independent or semi-independent living settings. There are a variety of living settings across the United States for people with developmental disabilities.

3 02, 2016

Getting and Keeping a Job

By |2021-04-20T18:58:04-04:00Feb 3, 2016|Treatment and Intervention|Comments Off on Getting and Keeping a Job

It was late summer and Ian was 18 years old and he was getting ready to start the transition program at his high school, a program for students 18-21 years old after they graduate from high school. I had to figure out how to make this work.

11 06, 2015

Get to Know Your Local Firefighters

By |2019-11-14T16:25:46-05:00Jun 11, 2015|Education, FXS|Comments Off on Get to Know Your Local Firefighters

Getting to know your local firefighters can help you and your child(ren) with Fragile X syndrome in so many more ways than you think. Read about how to engage them and how it will help your family.

3 06, 2015

Behavior and Fragile X Syndrome

By |2017-08-18T12:03:38-04:00Jun 3, 2015|Behavior|Comments Off on Behavior and Fragile X Syndrome

When discussing Fragile X syndrome and behavior, it is important to note that - like every person - the focus should not only be on the challenging behaviors that you may see. It is essential [...]

28 05, 2015

Preparing for Your Child’s Individualized Education Program (IEP)

By |2022-08-03T17:51:00-04:00May 28, 2015|Education|Comments Off on Preparing for Your Child’s Individualized Education Program (IEP)

Going to an IEP meeting was always an emotional experience for me. After a couple of years of meetings with a group of people—teachers, psychologists, administrators—who had obviously already made many decisions regarding my son ... I decided to make some changes.

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