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Lets Talk Married with (Fragile X) Children

By |2019-09-27T10:27:13-04:00Nov 16, 2018|Education, Webinar|

Many parents may worry that even the strongest marriages may buckle—or worse—under the intense demand of raising a child with special needs. Licensed marriage and family therapist Diane Simon Smith tackles this topic for couples raising children with Fragile X syndrome.

Back-to-School Articles

By |2018-08-02T07:54:38-04:00Aug 1, 2018|Education|

Here is a compilation of NFXF articles to help you and your children with Fragile X syndrome with school, from lunches to IEPs to hyperarousal. Every child is different, and you will find something ...

Planning for Emergency Events at School

By |2017-09-15T15:47:42-04:00Apr 12, 2017|Education, Treatment and Intervention|

With the anxiety and hyperarousal seen in children with Fragile X syndrome, it is important to plan for emergency events at your child’s school – a fire in the building and severe weather events, such as a tornado, a hurricane, a local fire, a chemical spill, etc. Lockdowns are discussed separately. If at all possible, develop a plan ahead of time, ideally at your child's IEP. If that is not possible, ask for a meeting to discuss this first thing of the school year.

Best Practice in Educational Strategies and Curricula

By |2017-02-01T10:00:21-05:00Feb 1, 2017|Education|

Finding the most effective interventions for students with Fragile X syndrome (FXS) can be difficult and often results in a “trial and error” approach. Even though a number of strategies have emerged and have been documented in the literature, the evidence-based interventions are limited. Promising outcomes are continuing to develop using the cognitive phenotype to better understand how to best teach students with FXS.

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