Back to School Resources for Parents (and Teachers) of Fragile X Students

//Back to School Resources for Parents (and Teachers) of Fragile X Students

Back to School Resources for Parents (and Teachers) of Fragile X Students

Back to school season can be stressful for families and children living with Fragile X syndrome, which also means receiving questions like this one:

An email written to NFXF asking for help with school and education for son with Fragile X syndrome.

To help this parent (and you) we have compiled our most popular school and education resources, including some specifically for teachers.

For Parents

School Transition Strategies

To address the often difficult milestone of a new school, our in-house expert and director of community services Jayne Dixon Weber created this essential list of tips and strategies based on her and other Fragile X parents’ experiences.

Preparing for Your Child’s Individual Education Program (IEP)

Going to an IEP (individualized education program) meeting for was always an emotional experience for Jayne. After a couple of years of meetings with teachers, psychologists, and administrators, Jayne decided to make some changes. This is her story about how not be intimidated by your IEP.

OT, SLP, AT & the IEP . . . Making Sense of the Alphabet Soup

Creating an IEP can be an incredibly confusing experience, and the “alphabet soup” of acronyms and legalese often increases the anxiety and uneasiness. One way to offset these feelings is to prepare ahead of time.

Consensus Documents for Treatments and Interventions for Fragile X: Education

Happy smiling child with Fragile X syndromeGeneral Educational Guidelines for Students With Fragile X Syndrome »
This guide provides a basic framework for understanding different aspects of the educational system, including intervention suggestions and strategies, an overview of the terminology, and the regulatory aspects of the process.

Early Childhood Developmental and Educational Guidelines for Children With Fragile X Syndrome »
For all children within the early childhood age range (birth to five years), inclusive, nurturing, and developmentally appropriate environments and caregiving are essential to growth and development. This document focuses on assessment, family, environment, and transition.

Educational Recommendations for Fragile X Syndrome: Elementary School »
Attending elementary school may be a child’s first encounter with school and the experience can be difficult, especially when separating from a parent for the first time. This document lists a number of strategies and supports that have proven successful.

Educational Guidelines for Fragile X Syndrome: Middle School And High School »
The transition into middle school or high school serves as an exciting time for many families, but is often accompanied by stress and anxiety. This document focuses on many of the important milestones that may be challenging for individuals and their families during this time, and what may come next.


For Teachers

The Top 10 Things Every Teacher Should Know About Fragile X Syndrome

For the teachers out there—or for parents to forward to a teacher—these are the top 10 things that will help bring out each child’s strengths.

By | 2019-09-23T16:21:48+00:00 Sep 5, 2019|Education|Comments Off on Back to School Resources for Parents (and Teachers) of Fragile X Students