By Jayne Dixon Weber|2024-02-28T15:05:38-05:00Oct 4, 2018|Behavior, Treatment and Intervention|
Halloween can offer challenges for children with Fragile X syndrome. Here we present activity ideas for you to consider, but the important point is to find what works for your family—and maybe it will lead to a new tradition.
By Dan Whiting|2023-05-18T17:23:39-04:00Sep 24, 2018|
Genetics & Inheritance Fragile X-associated disorders are passed down in families through a mutation in the FMR1 gene. The FMR1 gene is located on the X chromosome. Even for genetics professionals, FMR1 inheritance is [...]
By Dan Whiting|2023-12-21T00:36:20-05:00Jun 13, 2018|Webinar, Webinar Conference|
A discussion of the upcoming conference including how to get the most out of your time, what to look for, and how to have a great time and connect with the community.
By NFXF|2018-01-10T15:56:28-05:00Jan 8, 2018|Research|
The NFXF is looking for 10 parents of children with a diagnosis of Fragile X syndrome, including both males and females, from all over the country, to participate in a market research opportunity related to [...]
By Jayne Dixon Weber|2023-02-02T13:11:14-05:00Oct 24, 2017|Community, Hope & Inspiration, Newly Diagnosed|
Getting a diagnosis is hard. It’s really hard. There has been nothing else like it in my life and I cannot imagine there ever will be. It made me sad … really sad.
By Contributor|2023-03-09T19:07:20-05:00Oct 2, 2017|Autism, Webinar|
Individuals with a dual diagnosis of Fragile X syndrome and autism have reported greater cognitive and behavioral impairment. With Dr. Walter E. Kaufmann.
By Jayne Dixon Weber|2023-06-14T15:55:56-04:00Sep 14, 2017|Daily Living, Treatment and Intervention|
This is one more story about children who do not want to go poo … in the toilet. It is probably not for the faint of heart, though it does make you realize that you will do anything for your children.
By NFXF|2017-09-19T10:55:29-04:00Sep 14, 2017|Education, Treatment and Intervention|
Children whose development is affected by Fragile X syndrome are eligible for special education services. Part C of the Individuals with Disabilities Education Act (IDEA), a federal law, provides for services to children from birth [...]
By NFXF|2017-10-12T13:40:59-04:00Sep 8, 2017|FXCRC and Clinics, Treatment and Intervention|
While every Fragile X clinic is set up a little differently, they all offer similar services. They are staffed by people who understand Fragile X. Examples of evaluations offered at clinics through an initial intake include: medical, [...]
By Dan Whiting|2022-08-03T17:49:16-04:00Aug 3, 2017|
School Transition Strategies By Jayne Dixon Weber A new school can be tough for any child, and especially so for children living with Fragile X syndrome. To address this often difficult milestone, our in-house [...]