How to Help Your Child Cope with COVID-19
Dr. Marcia Braden provides tips and resources, including social story and visual schedule templates, to help you and your children during the COVID-19 pandemic.
31
03, 2020
Need a new search?
If you didn't find what you were looking for, try a new search!
26
03, 2020
We’re Here to Help During This Extraordinary Time
LINDA SORENSEN — With most of us staying at home now, we’re committed to providing you with the most timely and meaningful educational resources we have available. This includes sharing a series of articles, video series, and webinars.
18
03, 2020
Get Moving with Special Olympics’ Fit 5
The Special Olympics is a valuable program for so many families, and the Fit 5 program can help with you and your child's daily living strategies and routines.
18
10, 2019
Estate Planning: Special Needs Planning for Individuals and Caregivers — Webinar
Learn how to leave money and other assets for the benefit of a child with special needs without causing the child to lose important public benefits.
4
10, 2019
Guardianship for Special Needs Individuals and Caregivers — Webinar
Learn about if and when guardianship should be considered and the requirements needed, plus less restrictive alternatives, such as financial and healthcare powers of attorney.
5
09, 2019
Back to School Resources for Parents (and Teachers) of Fragile X Students
For the 2019 school year, we compiled our most popular school and education resources for parents and teachers.
24
04, 2019
Two New Fragile X Research Papers Now Available
Two recently published, peer-reviewed Fragile X research papers are now available on our website: Voice of People with Fragile X Syndrome and Their Families: Reports from a Survey on Treatment Priorities, and Best Practices in Fragile X Syndrome Treatment Development.
23
04, 2019
Best Practices in Fragile X Syndrome Treatment Development
Best Practices in Fragile X Syndrome Treatment Development By Craig A. Erickson, Walter E. Kaufmann, Dejan B. Budimirovic, Ave Lachiewicz, Barbara Haas-Givler, Robert M. Miller, Jayne Dixon Weber, Leonard Abbeduto, David Hessl, Randi J. [...]
18
04, 2019
Voice of People with Fragile X Syndrome and Their Families: Reports from a Survey on Treatment Priorities
Voice of People with Fragile X Syndrome and Their Families: Reports from a Survey on Treatment Priorities By Jayne Dixon Weber, Elizabeth Smith, Elizabeth Berry-Kravis, Diego Cadavid, David Hessl, and Craig Erickson This is [...]
17
12, 2018
Best Practices in Fragile X Syndrome Treatment Development
A peer-reviewed paper has just been published that discusses a variety of recommendations at the level of preclinical development, the transition from preclinical to human projects, family involvement, and multi-site trial planning. The recommendations are made with the vision that effective new treatment will lie at the intersection of innovation, rigorous and reproducible research, and stakeholder involvement.