The Special Olympics is a valuable program for so many families, and, at this unique time in our world, the Special Olympics Fit 5 program can help us improve our physical and mental fitness.
From the Special Olympics Resources website, the Fit 5 program is based on three simple goals:
- Exercise 5 days per week
- Eat 5 total fruits and vegetables per day
- Drink 5 bottles of water per day
The website has exercise videos for levels 1 through 5, with fellow athletes demonstrating the exercises and stretches, including a comprehensive guide to the program (PDF) and fitness cards (PDF).
You may also want to check out the Special Olympics’ Young Athlete Program and its resources, and Jayne Dixon Weber’s recent article, COVID-19 – My child is home from school or work or a day program! What do I do?
Life deals us circumstances that we can use to improve our lives, and this can be one of those. It is a very hard time on so many levels, many of which we haven’t seen yet, and parents with special needs children are hit especially hard. The NFXF is here to help. We are pulling together more resources — webinars, articles, etc. — so keep an eye on our emails, social media, and website for more. And, as always, reach out to us. You can email Jayne directly for assistance at jayne@fragilex.org, message us on Facebook, or send a message on our contact form. We will get back to you as soon as we can.
Now, go get fitter!
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The COVID-19 Vaccines and Fragile X
Dr. Craig Erickson held a webinar on the COVID-19 vaccines for individuals living with Fragile X premutations and full mutations. He also covered COVID-19 vaccine safety in general.
Is the COVID-19 Vaccine Safe for Individuals with Fragile X?
Dr. Craig Erickson, director of the Cincinnati Fragile X Research and Treatment Center at the Cincinnati Children's Hospital, received his first dose of the COVID-19 vaccine tells us why it’s safe.
Survey: Share Your Experience With Telehealth and Services During COVID
Parents or caregivers of individuals with Fragile X syndrome who has received services via telehealth during the COVID-19 pandemic may be eligible to participate.
Fragile X and Face Masks (Not What FXFM Stands For)
Looks like the wearing of face masks is here to stay for a while, so you may as well try to have some fun with it. I know, I know – they are not that fun. But, I did have a parent send me a link to a mask that has a chew cord as part of the mask. I just love how creative people are.
Telehealth Visits: Suggestions for Parents on How to Prepare
As the option to do telehealth visits opened up over the past six months, we have gathered information to help you make the most of your online visit for your child with Fragile X syndrome, whether they are a young child or an adult.
X Strides 2020: How Does a Virtual Run/Walk Fundraiser Work?
A virtual run/walk is pretty simple. You sign up, then you walk (or run, scooter, skip, bike, whatever you choose!) on September 27, 2020 (or any time before September 27!).
