How Do We Cope with the Current Circumstances

By |2020-08-20T18:42:33-04:00Apr 14, 2020|Behavior, Blog|

In this new recording, Marcia Braden discusses strategies for daily living with COVID-19. She discusses how anxiety can fuel behavior, and she gives ideas on how to set up your day and accommodations you can make to help keep anxiety at a minimum.

Can I use CBD to treat Fragile X syndrome?

By |2021-12-22T12:49:38-05:00Dec 13, 2019|Blog|

Craig Erickson, MD, the Director of the Cincinnati Fragile X Research and Treatment Center was asked by the National Fragile X Foundation (NFXF) to discuss the use of cannabidiol (CBD) for people with Fragile X syndrome (FXS) - to answer the questions around, Can I Use CBD to treat Fragile X syndrome.

What Advice Do You Have for SSI

By |2019-12-06T15:30:08-05:00Dec 6, 2019|Blog|

we are developing materials for adults with Fragile X syndrome. One area we receive a lot of questions from parents on is advice for applying for Supplemental Security Income (SSI) for their 18-year-old son or daughter.

What is Early Check?

By |2022-04-25T13:47:41-04:00Sep 13, 2019|Blog, Research|

Early Check is a unique voluntary research study that screens newborns for Fragile X syndrome and the premutation and Spinal Muscular Atrophy free of charge. It gathers important information and hopes to show the benefits of early testing and treatment and improve newborn screening (NBS) across the United States.

Chicago X Strides 2019 Photo Gallery

By |2019-07-25T22:35:13-04:00Jul 25, 2019|Blog, X Strides|

We had an amazing first annual X Strides Chicago on July 14, 2019.  Everyone that volunteered, ran, walked, organized a team, and donated made it a success. We were a force to be noticed that morning - raising awareness as people asked, What is Fragile X? View photos here.

Faces of Fragile X: Nicholas

By |2019-07-03T13:19:47-04:00Jul 3, 2019|Blog, Faces of Fragile X|

What would you like others to know about him? He is helpful and very patient when we drag him all over the place. What is your favorite thing about him? His smile is amazing and he is so fun to hang out with. If you could tell someone who doesn’t know anything about Fragile X one thing, what would it be? People with Fragile X have a very genuine heart. School can be a challenge but if you stay involved you can make it through. Once you get through the school years it is easier for them to be themselves.

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