Washington Update – ABLE Act & Budgets
Despite the fact that we're now 7 weeks into fiscal year 2012 the budget for 2012 that impacts FX research and programming (CDC, NIH, DOD) remains unfinished. There was a slim chance that it would [...]
2011 Annual Fund
Twenty-five-year-old David Inz works three jobs, has mastered public transportation and shares a residence in one of the several large apartment buildings that are home to the 35 young adults in his program. “The [...]
NFXF Introduces its new logo family and first tagline
The National Fragile X Foundation introduces its new logo family and its first tagline moving the foundation forward! The logo family stands modern, appealing and crisp. It highlights the NFXF’s human services emphasis. It provides [...]
10th anniversary celebration of the NCBDDD
Jeffery Cohen, Director of Governmental Affairs and Advocacy for the National Fragile X Foundation was in Washington DC last Monday and attended the 10th anniversary celebration of the National Center on Birth Defects and Developmental [...]
What are you thankful for?
We are working on a project and we would like to know what you are thankful for. Please complete the form below by Wednesday, November 9, 2011.
Finding Apps For Your Child
As technology moves forward, there have become increasingly more ways to help your child learn and navigate their life. You may have heard of Apple, Android, and PC apps which can be useful to that [...]
Make a Difference at Advocacy Day 2012
Advocacy Day 2012 is just around the corner. The date is March 6-7, 2012 and as in prior years training will be held on Tuesday (March 6) from 1-5pm and Congressional visits will be scheduled [...]
Self-Regulation Through the Life Span
Join the National Fragile X Foundation’s Executive Direct, Robert Miller and Coordinator of Support Services, Jayne Dixon Weber as they interview LINKS Group Leader and Fragile X parent Laureen Majeske and Developmental FX’s Tracy Stackhouse and Sarah “Mouse” Scharfenaker for a discussion on how self-regulation makes things work for Fragile X.
Parent/Caregiver Support Meeting in Western NY on Nov. 7, 2011
Please join us for a parent and caregiver support meeting on Monday November 7, 2011 hosted by the Fragile X Resource Group of Western New York. Date and Time Monday, November 7, 2011 7:00 pm [...]
Call for Abstracts for 2012 Conference
The National Fragile X Foundation invites all persons interested in Fragile X to submit abstracts to be considered for presentation at the 13th International Fragile X Conference. Submissions will be accepted from October 14, 2011 [...]
Study Recruitment: Children & Adults with Fragile X Syndrome Nashville's Fragile X Treatment Research Program, Vanderbilt University
This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Nashville's Fragile X Treatment Research Program at Vanderbilt University. The announcement and the parties conducting and sponsoring [...]
13th International Fragile X Conference information is now online!
The 13th International Fragile X Conference section of our site has now been published. This year's conference will be in Miami, Florida from July 25-29, 2012 at the InterContinential Hotel. We have posted all of [...]
Fragile X Syndrome: Research into Fragile X Syndrome, a common cause of inherited intellectual disability, is starting to generate treatments
The current issue of Neurology Now contains a six page article explaining Fragile X syndrome, the history of Fragile X research and the current status of that research. Our very own Holly Roos is featured. [...]
These Fragile X groups want to know more about you
Several of our Fragile X LINKS Groups have short online surveys for local families to take so that they can stay up to date with your needs and interests. Your feedback is important [...]
Share about a transition point in your life
The National Fragile X Foundation is looking people to share a first-person story from parents/family members point of view facing specific transition points. Submissions will be considered for inclusion into the Fragile X Quarterly and other future foundation communications.