Behavior and Fragile X Syndrome
When discussing FXS and behavior, the focus should be on the whole person. Some behaviors may be a result of the condition, of which many are positive.
Advances in Understanding Premutation Involvement in Women & Advice to Stay Healthy
Dr. Randi Hagerman gave this plenary talk regarding premutation involvement in women, but the FXTAS information here is equally important in men.
The 2015 NFXF Let ‘Em Know 5K!
Our annual “Let 'Em Know 5K” is coming back - a virtual event that brought together people from all over the country! For the past two years, this event to raise awareness and funds for [...]
Fragile X Families Fostering Real Relationships
The world can look like a lonely place when you first learn that Fragile X runs in your family. That is why one of the first things we tell people who receive a diagnosis is [...]
How an Adaptive Physical Education Class Should Be “Run”
An adaptive physical education class like this one set up in your school would be a wonderful program that every student could benefit from.
AZ: Family Brunch & Social
Fragile X Family Brunch in the Park Date: April 25, 2015 Time: 10:00 AM - 12:00 PM Location: Desert Breeze Park660 North Desert Breeze Blvd E Chandler, AZ 85226 We will be in the Mesquite [...]
UNC-Stanford Project on Brain Development in Fragile X Syndrome Receives $5M Grant Award
Carolina Institute for Developmental Disabilities (CIDD) at the University of North Carolina at Chapel Hill and the Center for Interdisciplinary Brain Sciences Research (CIBSR) at Stanford University The Carolina Institute for Developmental Disabilities (CIDD) [...]
Katie Couric to feature Fragile X on Yahoo News!
Katie Couric and her news team contacted us about featuring Fragile X on Yahoo News with Katie Couric. We’re excited to announce that they will be airing the piece soon! The news piece features interviews with NFXF Co-Founder Dr. Randi Hagerman, NFXF Board member Brain Silver and his wife Shari...
We’re Going Virtual: Update your Address Books!
The National Fragile X Foundation is closing the doors to our brick and mortar office, and our new mailing address will be located in Washington, DC. So please, update your address books! The biggest reason [...]
Fragile X Syndrome and Autism Spectrum Disorder: Similarities and Differences
It is important to note that it is more common for a child to be diagnosed with ASD and then to receive an additional diagnosis of FXS.
ABLE ACT Passes Senate
WASHINGTON, D.C. – Culminating a nearly eight year effort spanning four sessions of Congress the ABLE Act passed the Senate late Tuesday night with a vote of 76-16. The bill overwhelmingly earlier this [...]
ABLE Passes House
Eight Years of Hard Work by Advocates, One Step Closer to Reality Today the U.S. House of Representatives passed the Achieving A Better Life Experience Act. NFXF advocates have been urging their members of Congress to [...]
UMich: Study Opportunity for FXS Dads
the University of Michigan Researchers at the University of Michigan are looking for fathers of children with Fragile X syndrome to participate in a survey about their parenting experiences. Previous research has focused on [...]
Summer Student Fellowship: 2014 Summaries
The future of Fragile X research depends on inspiring and encouraging new generations of researchers to push Fragile X forward. That’s why we offer the annual Summer Student Fellowship, which assists young researchers in their [...]
Neuroimmunology Meets Neurodevelopmental: Innate and Adaptive Immune Function in FXS
Neuroimmunology is a relatively new field at the intersection of neuroscience and immunology. Its purpose is to describe how immune function affects brain development and function, and how signaling between cells in the brain affect levels [...]