2015

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2015 NFXF Advocacy Day: Our Biggest Turnout Ever!

Every March, we go to Washington, DC, for National Fragile X Foundation Advocacy Day, to advocate for Fragile X funding and important issues that will impact the future of our community. It is an incredible [...]

By |2015-03-16T15:26:29-04:00Mar 16, 2015|2015|Comments Off on 2015 NFXF Advocacy Day: Our Biggest Turnout Ever!

ABLE ACT Passes Senate

WASHINGTON, D.C. – Culminating a nearly eight year effort spanning four sessions of Congress the ABLE Act passed the Senate late Tuesday night with a vote of 76-16. The bill overwhelmingly earlier this [...]

By |2014-12-17T08:31:13-05:00Dec 17, 2014|2015, Advocacy, Advocacy Day|Comments Off on ABLE ACT Passes Senate

Warm Up for NFXF Advocacy Day 2015

ABLE Act hits all-time high 380 co-sponsors, appropriation injects $150 million into DOD and PRMRP, NFXF asked to nominate additional peer reviews to the PRMRP, Rep. Klein still refuses to allow debate on KASS, and [...]

By |2014-09-29T16:19:36-04:00Sep 29, 2014|2015|Comments Off on Warm Up for NFXF Advocacy Day 2015