2015

/2015

2015 NFXF Advocacy Day: Our Biggest Turnout Ever!

Every March, we go to Washington, DC, for National Fragile X Foundation Advocacy Day, to advocate for Fragile X funding and important issues that will impact the future of our community. It is an incredible [...]

By | 2015-03-16T15:26:29+00:00 Mar 16, 2015|2015|Comments Off on 2015 NFXF Advocacy Day: Our Biggest Turnout Ever!

ABLE ACT Passes Senate

WASHINGTON, D.C. – Culminating a nearly eight year effort spanning four sessions of Congress the ABLE Act passed the Senate late Tuesday night with a vote of 76-16. The bill overwhelmingly earlier this [...]

By | 2014-12-17T08:31:13+00:00 Dec 17, 2014|2015, Advocacy, Advocacy Day|Comments Off on ABLE ACT Passes Senate

ACT NOW: Show Them You’re ABLE!

We’re really close! The Achieving a Better Life Experience (ABLE) Act needs to come up for a vote this year. If it doesn't, we are back to where we started. We need your help! All [...]

By | 2014-11-24T09:35:45+00:00 Nov 24, 2014|2014, 2015|Comments Off on ACT NOW: Show Them You’re ABLE!

Warm Up for NFXF Advocacy Day 2015

ABLE Act hits all-time high 380 co-sponsors, appropriation injects $150 million into DOD and PRMRP, NFXF asked to nominate additional peer reviews to the PRMRP, Rep. Klein still refuses to allow debate on KASS, and [...]

By | 2014-09-29T16:19:36+00:00 Sep 29, 2014|2015|Comments Off on Warm Up for NFXF Advocacy Day 2015