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Researchers at the University of Michigan are looking for fathers of children with Fragile X syndrome to participate in a survey about their parenting experiences. Previous research has focused on how moms cope. This time, we want to hear from dads!

To participate you must be 18 years or older, male, and a parent (biological or adoptive) of at least one child with Fragile X syndrome. If you choose to participate in this study, you will be helping us better understand dads’ experiences with FXS and how those experiences impact your whole family. We hope that this information will provide insight on how to help families with a new diagnosis of FXS adapt in a positive way. To read more about this study and/or begin the questionnaire, please click the link below:

If you have any questions or concerns, please contact Kate Partynski at

This project has approval from the University of Michigan Institutional Review Board (IRBMED). Study No.: HUM00090840