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So far NFXF has created 481 blog entries.

Understanding a Fragile X Intermediate Result

By |2024-06-07T16:27:09-04:00Oct 15, 2021|Genetics and Inheritance|

Adult neurologists and reproductive specialists increasingly recommend Fragile X testing, as awareness has grown about FXTAS and FXPOI. Fragile X carrier testing during pregnancy has also become relatively commonplace in the US and elsewhere, even for women without a family history suspicious for Fragile X disorders.

A COVID-19 Social Story from NFXF

By |2021-01-05T18:48:26-05:00Apr 27, 2020|Treatment & Strategies|

The National Fragile X Foundation has created a social story to reflect the changing requirements that governments are enacting. There’s a lot of information — and misinformation — about COVID-19 out there, but there’s no doubt it’s impacted families in many, many ways.

Visual Perception Study

By |2019-09-23T17:47:39-04:00Jun 12, 2019|Opportunities for Families|

Our research is looking at how you see and remember the visual world, and how attention changes what we see. We hope our findings will provide a better understanding of the differences in vision and attention occurring in autism.

A Computer-based Intervention for Memory and Attention in Fragile X Syndrome

By |2019-05-14T15:13:49-04:00May 14, 2019|Keeping You Informed, Research, Treatment and Intervention|

A research team from the UC Davis MIND Institute recently published findings from a study using a computer program called Cogmed to train memory, flexible thinking, and attention in children and adolescents with Fragile X Syndrome. Referred to as ‘executive function’ - memory, flexible thinking, controlling impulses, and attention are problems characteristic of individuals with Fragile X Syndrome. The computer program was employed with 100 children and adolescents with Fragile X Syndrome – presenting them with challenging visual and auditory tasks involving memory and attention and challenging them to think flexibly in order to complete those tasks.

The Friendship of Julian and Jonah

By |2019-04-23T09:55:57-04:00Apr 15, 2019|Faces of Fragile X|

My son has Fragile X Syndrome and I often felt sad that friendship -- which I value enormously -- was something Julian didn’t even notice. He didn’t miss it; I missed it for him. After all, wishing for friends for your kid is pretty universal. Inclusive schools and communities are great on a societal level, but maybe not enough on a personal level.

Helping Fragile X Families in Colombia

By |2019-03-12T13:01:40-04:00Mar 12, 2019|Research|

With a number of colleagues from the UC Davis MIND Institute in California, including Dr. Randi Hagerman, and colleagues from the Asociación X Frágil Colombia, I just completed a 10-day trip throughout Colombia including Cali, Medellin, Bogota, Buqa and Ricaurte (the small, isolated rural town with ten times the typical prevalence of Fragile X). Our work involved numerous talks at medical centers and well-over 75 meetings with individual families.

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