Researchers at the UC Davis MIND Institute are examining changes in the brain and cognition associated with aging, in males with the Fragile X premutation compared to those without.

Who can participate?

Males over 45 years old who are either:

  • Carriers of the Fragile X premutation, or
  • Healthy men not carrying the Fragile X premutation

What does the study involve?

  • Two 2-day visits to the MIND Institute over 5 years.
  • Medical history exam.
  • Neuropsychological exam and behavioral testing.
  • MRI and blood draw.
  • In the year between visits, we will mail you additional measures.

What else can be expected?

  • Upon request, families will receive feedback about cognitive strengths and weaknesses.
  • You will be compensated for your time and travel.
  • You will receive a picture of your brain.

About the MIND Institute

The UC Davis MIND Institute is a collaborative international research center, committee to the awareness, understanding, prevention, and care of neurodevelopmental disorders. All studies take place at:

MIND Institute
2825 50th Street
Sacramento, California, 95817

Visit or more information.


If you’d like to learn more or apply for this opportunity, please fill out the form to send your contact information to the study coordinator or you may contact Jessica Famula directly at (916) 703-0470.

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View More Opportunities

Parent Survey: Children’s Behavioral Strengths and Challenges

The MIND Group at the University of Minnesota is conducting a survey for parents of children with Fragile X syndrome to learn about how genetic and neurodevelopmental differences impact behavioral strengths and challenges. Parents of 3–17 year old children living with Fragile X are eligible to participate.

Study: Language Environment Analysis Project (LEAP)

Purdue University is conducting a research study to learn about language and social communication development in Fragile X syndrome. Children ages 3–4 years (36–60 months) with the full mutation may be eligible to participate.

Purdue Early Childhood Study – PANDABox

Purdue University is conducting a research study to learn about development of infants with Fragile X syndrome. Boys and girls ages 6-18 months with the full mutation may be eligible to participate.

Fragile X Premutation Carrier Study at University of Kansas

The University of Kansas BRAIN Lab is conducting a research study to learn about behavioral and brain differences associated with premutations of the Fragile X gene, FMR1. Individuals ages 50–80 with the FMR1 gene premutation with or without FXTAS may be eligible to participate.